Prickett Michelle H, Flume Patrick A, Sabadosa Kathryn A, Tran Quynh T, Marshall Bruce C
Division of Pulmonary and Critical Care, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.
Medical University of South Carolina, Charleston, SC, USA.
J Cyst Fibros. 2023 Jan;22(1):9-16. doi: 10.1016/j.jcf.2022.07.002. Epub 2022 Jul 22.
Better health and longer survival for many people with cystic fibrosis (PwCF) compels the continued evolution of the CF care model. Designed to deliver specialized care for a complex chronic condition, the model is organized around interdisciplinary healthcare teams at dedicated care centers. Introduction of CFTR modulators and the COVID-19 pandemic have catalyzed the model's evolution. Many PwCF on modulator therapies are experiencing better health and considering changes in their daily care routines. Some of the growing number of adults with CF are experiencing age-associated co-morbidities, requiring coordination with new specialists. The pandemic accelerated the use of telehealth, revealing tradeoffs from new configurations of care delivery. Herein we review the implications of these recent shifts and offer recommendations to improve the quality of care coordinated across the interdisciplinary teams and an expanding field of subspecialists, while supporting the ability of the patient to take on greater responsibility in disease management.
许多囊性纤维化患者（PwCF）健康状况的改善和生存期的延长促使囊性纤维化护理模式不断发展。该模式旨在为复杂的慢性病提供专业护理，围绕专门护理中心的跨学科医疗团队进行组织。CFTR调节剂的引入和新冠疫情推动了该模式的发展。许多接受调节剂治疗的PwCF健康状况有所改善，并在考虑改变日常护理习惯。越来越多的成年CF患者出现与年龄相关的合并症，需要与新的专科医生进行协调。疫情加速了远程医疗的使用，揭示了新的护理提供配置带来的权衡。在此，我们回顾这些近期转变的影响，并提出建议，以提高跨学科团队和不断扩大的专科领域之间协调护理的质量，同时支持患者在疾病管理中承担更大责任的能力。
