Institute of Applied Health Research, University of Birmingham, Birmingham, UK
Forward Thinking Birmingham, Birmingham Women's and Children's NHS Foundation Trust, Birmingham, UK.
BMJ Open. 2022 Jul 27;12(7):e065065. doi: 10.1136/bmjopen-2022-065065.
Self-harm is highly prevalent among young people with eating disorders. However, why a young person may develop and continue to experience both an eating disorder and self-harm is unclear. This study will investigate the frequency, intensity, duration, function, context and processes of self-harm among people aged 16-25 diagnosed with an eating disorder. It will explore participants' perspectives on the genesis and functions of both their self-harm and eating disorder, as well as their support needs. The study was designed with the input of members of a Young Persons' Advisory Group, who will be key to study delivery and dissemination.
This exploratory study has a sequential mixed-methods explanatory design. Between 70 and 100 young people aged 16-25 with both an eating disorder diagnosis and self-harm thoughts and/or behaviours will be recruited from three NHS Eating Disorder outpatient services in England. Phase 1: a 14-day (six prompts per day) ecological momentary assessment (EMA) of participants' feelings, thoughts, motivations, behaviours and experiences of self-harm. Phase 2: 20-30 participants from phase 1 will be reapproached to take part in an in-depth qualitative interview on the psychological, emotional and social factors that underlie their self-harm and eating disorder as well as their support needs. EMA data from phase 1 will be analysed using descriptive and multilevel statistics. Qualitative interview data from phase 2 will be analysed using inductive and deductive thematic analysis. Results from both phases will be integrated using a mixed-methods matrix, with each participant's data from both phases compared alongside comparative analysis of the datasets as a whole.
The study gained ethical approval from the NHS HRA West Midlands-Black Country Research Ethics Committee (number: 296032). We anticipate disseminating findings to clinical, academic and lived experience audiences, at academic conferences, through peer-reviewed articles, and through various public engagement activities (eg, infographics, podcasts).
自伤在患有饮食失调症的年轻人中非常普遍。然而,为什么年轻人会同时发展并持续经历饮食失调和自伤还不清楚。本研究将调查 16-25 岁被诊断患有饮食失调症的人群中自伤的频率、强度、持续时间、功能、背景和过程。它将探讨参与者对自伤和饮食失调症的起源和功能的看法,以及他们的支持需求。该研究是在年轻人咨询小组的成员的投入下设计的,他们将是研究交付和传播的关键。
这是一项具有探索性的混合方法解释性设计的研究。将从英格兰的三个 NHS 饮食失调门诊服务机构招募 70-100 名年龄在 16-25 岁之间、既患有饮食失调症又有自伤想法和/或行为的年轻人。第 1 阶段:参与者在 14 天内(每天 6 次提示)对自己的感觉、想法、动机、行为和自伤经历进行生态瞬时评估(EMA)。第 2 阶段:从第 1 阶段中重新邀请 20-30 名参与者参加深入的定性访谈,探讨他们自伤和饮食失调的心理、情感和社会因素以及他们的支持需求。第 1 阶段的 EMA 数据将使用描述性和多层次统计进行分析。第 2 阶段的定性访谈数据将使用归纳和演绎主题分析进行分析。两个阶段的结果将使用混合方法矩阵进行整合,每个参与者的两个阶段的数据将进行比较,同时对整个数据集进行比较分析。
该研究获得了 NHS HRA 西米德兰兹-布莱克乡村研究伦理委员会的伦理批准(编号:296032)。我们预计将向临床、学术和生活经验受众传播研究结果,包括学术会议、同行评审文章以及各种公众参与活动(如信息图表、播客)。