Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.
Department of Oncology, Johns Hopkins Sidney Kimmel Comprehensive Cancer Center, Baltimore, MD, United States.
Front Public Health. 2022 Jul 11;10:931102. doi: 10.3389/fpubh.2022.931102. eCollection 2022.
Our objective is to pilot an advertisement-driven sampling procedure among African American (AA) breast cancer survivors living in Maryland. These pilot study methods will inform a future population-based study of AA breast cancer survivors at high risk of poor outcomes due to biological differences and social inequities.
This cross-sectional study utilizes an innovative, social media-based advertisement campaign with an associated social media study page to recruit 100 AA breast cancer survivors. Participants are biologically female, aged 18 and older, identify as AA/Black, have a diagnosis of breast cancer, and reside in Maryland. A preset "Audience" was created Meta (formerly Facebook) to automatically target potential interest in the online study geolocation and public social media interests (estimated range = 101,000 women). Eligible participants complete an online survey including demographic and clinical characteristics, cancer screening, healthcare access, and utilization, COVID-19 impact, quality of doctor-patient communication, and preferences for future study participation.
Recruitment began on 5 January 2022 and remains ongoing. As of 7 June 2002: 124 completed the screener, 110/124 (88.7%) consented passively, 24/110 (21.8%) started but did not complete survey, 86/110 (78.1%) completed the survey.
Results from this study will inform a statewide multilevel prospective population-based study to improve health behaviors, disease management, and self-efficacy of chronic disease management among AA breast cancer survivors.
本研究旨在对马里兰州的非裔美国（AA）乳腺癌幸存者进行广告驱动的抽样调查。这些试点研究方法将为未来一项基于人群的研究提供信息，该研究将针对因生物学差异和社会不平等而处于不良预后高风险的 AA 乳腺癌幸存者。
本横断面研究采用了一种创新的、基于社交媒体的广告宣传活动，并附有一个社交媒体研究页面，以招募 100 名 AA 乳腺癌幸存者。参与者为生物学女性，年龄在 18 岁及以上，自我认同为 AA/黑人群体，患有乳腺癌，并居住在马里兰州。通过在 Meta（前身为 Facebook）上创建一个预设的“受众”，可以根据地理位置和公共社交媒体兴趣自动定向对在线研究感兴趣的人群（估计范围为 101,000 名女性）。符合条件的参与者完成一份在线调查，内容包括人口统计学和临床特征、癌症筛查、医疗保健获取和利用、COVID-19 影响、医患沟通质量以及对未来参与研究的偏好。
招募工作于 2022 年 1 月 5 日开始，目前仍在进行中。截至 2023 年 6 月 7 日：124 人完成了筛选，110/124（88.7%）被动同意，24/110（21.8%）开始但未完成调查，86/110（78.1%）完成了调查。
本研究的结果将为一项全州范围内的多层次前瞻性基于人群的研究提供信息，以改善 AA 乳腺癌幸存者的健康行为、疾病管理和慢性病管理的自我效能。
