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“方便太多了,效果也一样好”:1 型糖尿病诊断后远程开始连续血糖监测的体验。

'Much more convenient, just as effective': Experiences of starting continuous glucose monitoring remotely following Type 1 diabetes diagnosis.

机构信息

Division of Endocrinology, Gerontology, and Metabolism, Department of Medicine, Stanford University School of Medicine, Stanford, California, USA.

Division of Endocrinology and Diabetes, Department of Pediatrics, Stanford University School of Medicine, Stanford, California, USA.

出版信息

Diabet Med. 2022 Nov;39(11):e14923. doi: 10.1111/dme.14923. Epub 2022 Aug 8.

Abstract

AIM

Initiating continuous glucose monitoring (CGM) shortly after Type 1 diabetes diagnosis has glycaemic and quality of life benefits for youth with Type 1 diabetes and their families. The SARS-CoV-2 pandemic led to a rapid shift to virtual delivery of CGM initiation visits. We aimed to understand parents' experiences receiving virtual care to initiate CGM within 30 days of diagnosis.

METHODS

We held focus groups and interviews using a semi-structured interview guide with parents of youth who initiated CGM over telehealth within 30 days of diagnosis during the SARS-CoV-2 pandemic. Questions aimed to explore experiences of starting CGM virtually. Groups and interviews were audio-recorded, transcribed and analysed using thematic analysis.

RESULTS

Participants were 16 English-speaking parents (age 43 ± 6 years; 63% female) of 15 youth (age 9 ± 4 years; 47% female; 47% non-Hispanic White, 20% Hispanic, 13% Asian, 7% Black, 13% other). They described multiple benefits of the virtual visit including convenient access to high-quality care; integrating Type 1 diabetes care into daily life; and being in the comfort of home. A minority experienced challenges with virtual care delivery; most preferred the virtual format. Participants expressed that clinics should offer a choice of virtual or in-person to families initiating CGM in the future.

CONCLUSION

Most parents appreciated receiving CGM initiation education via telehealth and felt it should be an option offered to all families. Further efforts can continue to enhance CGM initiation teaching virtually to address identified barriers.

摘要

目的

在 1 型糖尿病诊断后不久开始连续血糖监测(CGM),可改善 1 型糖尿病青少年及其家庭的血糖控制和生活质量。SARS-CoV-2 大流行促使 CGM 启动访视迅速转向虚拟交付。我们旨在了解家长在接受虚拟护理以在诊断后 30 天内开始 CGM 时的体验。

方法

我们对在 SARS-CoV-2 大流行期间通过远程医疗在诊断后 30 天内启动 CGM 的青少年的父母进行了焦点小组和访谈,使用半结构化访谈指南。问题旨在探索虚拟启动 CGM 的经验。对小组和访谈进行录音、转录和使用主题分析进行分析。

结果

参与者为 16 名英语为母语的父母(年龄 43±6 岁;63%为女性),他们的 15 名青少年(年龄 9±4 岁;47%为女性;47%为非西班牙裔白人,20%为西班牙裔,13%为亚裔,7%为黑人,13%为其他族裔)刚刚开始使用 CGM。他们描述了虚拟访问的多个好处,包括方便获得高质量的护理;将 1 型糖尿病护理融入日常生活;以及在家中感到舒适。少数人在虚拟护理提供方面遇到了挑战;大多数人更喜欢虚拟格式。参与者表示,诊所未来应为开始 CGM 的家庭提供虚拟或亲自就诊的选择。

结论

大多数家长赞赏通过远程医疗获得 CGM 启动教育,并认为这应该是向所有家庭提供的一种选择。进一步的努力可以继续加强虚拟 CGM 启动教学,以解决已确定的障碍。

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