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复发恐惧量表:西班牙语版本及复发缓解型多发性硬化症患者样本的心理测量特征

Fear of Relapse Scale: Spanish version and psychometric characteristics in a sample of patients with Relapsing-Remitting multiple sclerosis.

作者信息

Broche-Pérez Y, Jiménez-Morales R M, Monasterio-Ramos L O, Vázquez-Gómez L A, Fernández-Fleites Z

机构信息

Psychology Department, Universidad Central "Marta Abreu" de Las Villas, Santa Clara, Cuba; CognitiON (Cuban Inicative on Cognitive Health), Santa Clara, Cuba.

Instituto Superior Antonio Ruiz de Montoya, Misiones, Argentina.

出版信息

Neurologia (Engl Ed). 2024 Nov-Dec;39(9):749-755. doi: 10.1016/j.nrleng.2022.06.003. Epub 2022 Jul 27.

DOI:10.1016/j.nrleng.2022.06.003
PMID:35907628
Abstract

INTRODUCTION

Relapses are a hallmark of multiple sclerosis, being a characteristic feature of relapsing-remitting multiple sclerosis (RRMS). The occurrence of a relapse constitutes a source of significant discomfort that impacts all domains of daily life of patients with multiple sclerosis (PwMS). In this study we first explored the psychometric properties of the Spanish version of the Fear of Relapse Scale (FoR) in a sample of patients with RRMS. Besides, we explored the relationship between the Fear of Relapse Scale with fatigue and cognitive perceived deficits in our PwMS sample.

METHODS

An online cross-sectional survey was conducted on 173 MS patients from 12 Spanish-speaking countries (Argentina, Mexico, Uruguay, Dominican Republic, Spain, Cuba, Colombia, Guatemala, Chile, Paraguay, Peru, and El Salvador). Confirmatory factor analysis (CFA) was performed to assess the factor structure of the scale. Multiple linear regression was used to evaluate the effects of health self-perception, fatigue, and perceived cognitive deficits over fear of relapse.

RESULTS

The three-factor model in the CFA yielded a good model fit (χ/df = 2.25, P < .001, RMSEA = .078, CFI = .91). McDonalds' Omega of the FoR (Spanish version) was .91. There was a statistically significant inverse correlation between FoR and health self-perception, and a positive correlation between FoR, fatigue, and perceived cognitive deficits. Finally, level of fatigue was a predictor of fear of relapse.

CONCLUSIONS

The Spanish version of the Fear of Relapse Scale is a valid and reliable instrument to explore the experience of fear of relapse in patients with RRMS.

摘要

引言

复发是多发性硬化症的一个标志,是复发缓解型多发性硬化症(RRMS)的一个特征性表现。复发的发生是一个严重不适的来源,会影响多发性硬化症患者(PwMS)日常生活的各个方面。在本研究中,我们首先在RRMS患者样本中探讨了西班牙语版复发恐惧量表(FoR)的心理测量特性。此外,我们还在PwMS样本中探讨了复发恐惧量表与疲劳和认知感知缺陷之间的关系。

方法

对来自12个讲西班牙语国家(阿根廷、墨西哥、乌拉圭、多米尼加共和国、西班牙、古巴、哥伦比亚、危地马拉、智利、巴拉圭、秘鲁和萨尔瓦多)的173名MS患者进行了在线横断面调查。进行验证性因素分析(CFA)以评估该量表的因素结构。使用多元线性回归来评估健康自我认知、疲劳和认知感知缺陷对复发恐惧的影响。

结果

CFA中的三因素模型具有良好的模型拟合度(χ/df = 2.25,P <.001,RMSEA =.078,CFI =.91)。FoR(西班牙语版)的麦克唐纳欧米茄系数为.91。FoR与健康自我认知之间存在统计学上显著的负相关,FoR与疲劳和认知感知缺陷之间存在正相关。最后,疲劳程度是复发恐惧的一个预测因素。

结论

西班牙语版复发恐惧量表是一种有效且可靠的工具,可用于探索RRMS患者的复发恐惧体验。

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