Department of Neonatology, GFO Kliniken, Bonn, Germany.
Department of Gynaecology and Obstetrics, Städtische Kliniken, Cologne, Germany.
Cardiol Young. 2023 Jul;33(7):1172-1176. doi: 10.1017/S104795112200213X. Epub 2022 Aug 2.
Parental counselling after antenatal diagnosis of a congenital heart defect requires a high degree of professional and emotional competence and ultimately a sense of responsibility on the part of the consulting physicians. However, little is known about parents` perceptions and evaluation of these consultations.
MATERIAL/METHODS: Survey on 425 women who received interdisciplinary counselling after antenatal diagnosis of a complex fetal congenital heart defect in a specialized prenatal outpatient clinic with an affiliated paediatric heart centre. Two questionnaires were used to retrospectively evaluate the parental perception and impact on counselling, particularly on decision-making. Questionnaires differed between women conceiving the child and women who terminated the pregnancy.
400 women continued, 25 women terminated the pregnancy after diagnosis and counselling. Good quality of life was reported for 68% of the children, 15% died postnatally in the further course. 95% rated the counselling as good or very good regardless of the child´s outcome. 73% described the counselling as highly important for their subsequent decision. The possibility of termination of pregnancy was discussed with 37% of the respondents, 22% of them found it outrageous or very distressing. Of all respondents, one woman would have made a different decision regarding continuation of the pregnancy in retrospect.
Retrospectively, parents rate prenatal counselling extremely positively, irrespective of the severity of the child´s heart defect. It can be assumed that the consistent joint interdisciplinary consultation and the high reputation of the cooperating heart centre have had an influence on the below-average rate of termination of pregnancy.
在产前诊断出先天性心脏缺陷后，对父母进行咨询需要咨询医生具备高度的专业和情感能力，最终需要承担一定的责任。然而，目前对于父母对这些咨询的看法和评价知之甚少。
材料/方法：对在一家附属儿科心脏中心的专门产前门诊接受复杂胎儿先天性心脏缺陷联合咨询的 425 名女性进行了调查。使用了两个问卷来回顾性评估父母的感知和咨询的影响，特别是对决策的影响。问卷在怀孕的女性和终止妊娠的女性之间有所不同。
400 名女性继续妊娠，25 名女性在诊断和咨询后终止了妊娠。68%的孩子报告生活质量良好，15%在随后的过程中在产后死亡。无论孩子的结局如何，95%的人都将咨询评为良好或非常好。73%的人将咨询描述为对他们随后的决定非常重要。37%的受访者被讨论了终止妊娠的可能性，其中 22%的人认为这是令人震惊或非常痛苦的。在所有受访者中，一名女性回顾后会对继续妊娠做出不同的决定。
回顾性地，父母对产前咨询的评价极高，无论孩子的心脏缺陷严重程度如何。可以假设，一致的联合跨学科咨询和合作心脏中心的高声誉对较低的终止妊娠率产生了影响。
