College of Nursing, Medical University of South Carolina, 99 Jonathan Lucas Street MS 160, Charleston, SC, 29425, USA.
Department of Pediatrics, Division of Pediatric Neurology, Shawn Jenkins Children's Hospital and Medical University of South Carolina, Charleston, SC, USA.
J Clin Psychol Med Settings. 2023 Jun;30(2):251-260. doi: 10.1007/s10880-022-09898-1. Epub 2022 Aug 5.
Epilepsy affects 1% of youth and is associated with neurocognitive and psychosocial comorbidities, increased risk of mortality, and poor health-related outcomes. Health disparities in children and youth with epilepsy (CYE) have been understudied. A Special Interest Group (SIG) within the Pediatric Epilepsy Research Consortium is conducting a scoping review to systematically assess the literature and highlight the gaps in access to clinical care and management of pediatric epilepsy. The methodology for this review is presented. In conducting a peer-reviewed assessment of the scope of health disparities in pediatric epilepsy, we learned that developing the methodology for and conducting a comprehensive scoping review with multiple contributors resulted in a time-intensive process. While there is an evidence to suggest that health disparities do exist in CYE, very few studies have focused on these disparities. Disparity results are often not included in key elements of articles, lending them to be underemphasized and underrecognized. Preliminary conclusions inform several important research considerations.
癫痫影响 1%的年轻人，与神经认知和社会心理共病、死亡率增加以及健康相关结局较差有关。儿童和青少年癫痫（CYE）中的健康差距尚未得到充分研究。儿科癫痫研究联盟内的一个特别兴趣小组（SIG）正在进行范围综述，以系统评估文献并突出在获得临床护理和管理儿科癫痫方面的差距。提出了本综述的方法。在对儿科癫痫中健康差距的范围进行同行评议评估时，我们了解到，制定方法并与多个贡献者一起进行全面的范围综述会导致耗时的过程。虽然有证据表明 CYE 中确实存在健康差距，但很少有研究关注这些差距。差异结果通常不包含在文章的关键要素中，导致它们被低估和忽视。初步结论为一些重要的研究考虑提供了信息。
