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一项由多学科主导的早期关节炎服务,用于管理患者所指出的早期炎症性关节炎中的参与限制:一项关于服务使用者和工作人员观点的定性研究。

A multidisciplinary-led early arthritis service to manage client-identified participation restrictions in early inflammatory arthritis: A qualitative study of service user and staff perspectives.

作者信息

Codd Yvonne, Coe Áine, Kane David, Mullan Ronan H, Stapleton Tadhg

机构信息

Discipline of Occupational Therapy, School of Medicine, Trinity College Dublin, Dublin, Ireland.

Rheumatology Departments Naas General and Tallaght University Hospital, Dublin, Ireland.

出版信息

Musculoskeletal Care. 2023 Mar;21(1):130-142. doi: 10.1002/msc.1677. Epub 2022 Aug 7.

Abstract

BACKGROUND

The impact of inflammatory arthritis (IA) on occupational performance and on participation in meaningful life roles is recognised. However, limited research has explored how clinical services support broader life impact and participation restrictions associated with early disease as part of routine healthcare. This exploratory study was undertaken to describe how a novel multidisciplinary-led early arthritis service approach addresses client-identified participation restrictions in early IA.

METHODS

Qualitative Description (QD) approaches were used to explore perspectives of staff and clients of these multidisciplinary-led early arthritis services in Ireland. Data were gathered using focus groups with staff, and individual semi-structured interviews with clients. Transcripts were analysed using thematic analysis.

RESULTS

Fifteen staff working in these services participated in the focus groups and 43 clients with IA participated in interviews (female n = 31); diagnosis duration ranged from 5 to 24 months. Participants described how the multidisciplinary-led service had a clear remit to address participation alongside traditional symptom management and provided automatic, immediate access to interventions focussed on identification and management of participation restrictions experienced in early disease. The service model utilised a delivery approach that allowed for ease of early access to a full multidisciplinary team and prolonged support. The most significant feature of the service approach was 'the centrality of the client' which influenced a person-centred approach to identification of needs and priorities for interventions.

CONCLUSION

Findings indicate the role and value of this innovative multidisciplinary approach in addressing client-identified participation restrictions in routine clinical practice that is positively regarded by clients and staff.

摘要

背景

炎症性关节炎(IA)对职业表现以及参与有意义的生活角色的影响已得到认可。然而,作为常规医疗保健的一部分,探索临床服务如何支持与早期疾病相关的更广泛生活影响和参与限制的研究有限。本探索性研究旨在描述一种新型的多学科主导的早期关节炎服务方法如何解决IA早期患者所确定的参与限制问题。

方法

采用定性描述(QD)方法来探究爱尔兰这些多学科主导的早期关节炎服务的工作人员和患者的观点。通过与工作人员进行焦点小组讨论以及与患者进行个体半结构化访谈来收集数据。使用主题分析法对访谈记录进行分析。

结果

在这些服务机构工作的15名工作人员参与了焦点小组讨论,43名IA患者参与了访谈(女性n = 31);诊断时长为5至24个月。参与者描述了多学科主导的服务如何在传统症状管理的同时,明确致力于解决参与问题,并提供自动、即时的干预措施,重点是识别和管理早期疾病中出现的参与限制。该服务模式采用的提供方式便于患者尽早接触到完整的多学科团队并获得长期支持。服务方法最显著的特点是“以患者为中心”——这影响了一种以人为本的方法来确定干预措施的需求和优先事项。

结论

研究结果表明,这种创新的多学科方法在解决常规临床实践中患者所确定的参与限制方面的作用和价值,得到了患者和工作人员的积极认可。

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