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社区精神分裂症患者面临的挑战:一项叙事探究。

Challenges faced when living with schizophrenia in the community: A narrative inquiry.

作者信息

Gong Jin Wei, Luo Dan, Liu Wen Jia, Zhang Juan, Chen Zi Ru, Wang Qin-Yu, Yang Xin Yi, Yang Bing Xiang, Huang Hai-Shan, Wang Xiao Qin

机构信息

School of Nursing, Wuhan University, China.

University of Washington School of Nursing, Seattle, USA.

出版信息

Int J Soc Psychiatry. 2023 Mar;69(2):420-429. doi: 10.1177/00207640221109168. Epub 2022 Aug 9.

DOI:10.1177/00207640221109168
PMID:35943191
Abstract

BACKGROUND

Schizophrenia is a chronic and severe mental disorder. People with schizophrenia have transferred from hospital-based care to community-based care with the support of mental health legal policies. Challenges faced in the community should be emphasized. Limited qualitative studies have explored the challenges of living with schizophrenia.

AIMS

To explore the challenges of people living with schizophrenia in the community.

METHODS

A narrative method was used, including semi-structured, face-to-face interviews. Thematic analysis approach was used to analyze data.

RESULTS

Ten clients and their family members participated in the study. Analysis revealed three main themes related to their challenges in the community: deficits in self-management of illness; insufficient community mental health care; and the influence of policy. These challenges prevent those with schizophrenia from effectively managing their illness, returning to a productive role in society, and improving their quality of life.

CONCLUSIONS

There are challenges in mental health rehabilitation and social reintegration of individuals with schizophrenia. There is a need for continuous community mental rehabilitation services, appropriate policy support, and the need to educate the public to reduce social bias and discrimination which allows individuals with schizophrenia to assume a productive role in the community.

摘要

背景

精神分裂症是一种慢性严重精神障碍。在心理健康法律政策的支持下,精神分裂症患者已从基于医院的护理转向基于社区的护理。应强调在社区中面临的挑战。有限的定性研究探讨了精神分裂症患者的生活挑战。

目的

探讨社区中精神分裂症患者的挑战。

方法

采用叙事方法,包括半结构化面对面访谈。使用主题分析法分析数据。

结果

10名患者及其家庭成员参与了研究。分析揭示了与他们在社区中的挑战相关的三个主要主题:疾病自我管理方面的缺陷;社区心理健康护理不足;以及政策的影响。这些挑战阻碍了精神分裂症患者有效管理疾病、重返社会发挥生产性作用以及提高生活质量。

结论

精神分裂症患者在心理健康康复和社会重新融入方面存在挑战。需要持续的社区精神康复服务、适当的政策支持,以及教育公众以减少社会偏见和歧视,使精神分裂症患者能够在社区中发挥生产性作用。

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