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创伤性脑损伤患者照顾者经济生活质量的 8 项经济生活质量短表评分可靠有效使用的初步证据。

Initial Evidence for Reliable and Valid Use of Scores on the 8-Item Econ-QOL Short Form to Measure Economic Quality of Life in Caregivers of Persons With Traumatic Brain Injury.

机构信息

Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.

Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI.

出版信息

Arch Phys Med Rehabil. 2023 Mar;104(3):430-437. doi: 10.1016/j.apmr.2022.07.015. Epub 2022 Aug 6.

Abstract

OBJECTIVE

To provide reliability and validity data to support the clinical utility of Economic Quality of Life Measure (Econ-QOL) scores in caregivers of civilians and service members/veterans with traumatic brain injury (TBI).

DESIGN

Cross-sectional survey study.

SETTING

Three academic medical centers and a Veterans Affairs treatment facility.

PARTICIPANTS

376 caregivers of civilians (n=213) and service members/veterans (n=163) with TBI (N=376).

INTERVENTIONS

N/A.

MAIN OUTCOME MEASURES

Econ-QOL and several patient-reported outcome measures (Traumatic Brain Injury Caregiver Quality of Life Caregiver-Specific Anxiety and Caregiver Strain, Patient-Reported Outcomes Measurement Information System sleep-related impairment, Neurological Quality of Life Measurement System positive affect and well-being) and measures of financial status (self-reported income).

RESULTS

Internal consistency reliability of the Econ-QOL Short Form scores were excellent (all Cronbach's alphas ≥.92). There were no floor or ceiling effects for scores. There was evidence of convergent and discriminant validity, with the Econ-QOL scores having the strongest relationships with self-reported income (convergent validity evidence) and weak relationships with the other measures (discriminant validity evidence). Individuals with scores that were "below or possibly below" the poverty line (according to 2016 federal government poverty level thresholds) reported worse economic quality of life relative to those individuals who were definitely above the poverty line, supporting known-groups validity.

CONCLUSIONS

This article establishes the clinical utility of scores on the Econ-QOL Short Form in caregivers of persons with TBI and provides evidence that it is valid and appropriate to use such scores not only in a variety of different disability populations (eg, spinal cord injury, stroke) but also in caregivers.

摘要

目的

提供可靠性和有效性数据,以支持经济生活质量量表(Econ-QOL)评分在民用和军人/退伍军人创伤性脑损伤(TBI)照顾者中的临床实用性。

设计

横断面调查研究。

地点

三家学术医疗中心和一家退伍军人事务治疗机构。

参与者

376 名民用(n=213)和军人/退伍军人(n=163)TBI 照顾者(N=376)。

干预措施

无。

主要观察指标

Econ-QOL 和几种患者报告的结果测量(创伤性脑损伤照顾者生活质量照顾者特异性焦虑和照顾者压力、患者报告的结果测量信息系统睡眠相关障碍、神经生活质量测量系统积极情绪和幸福感)和财务状况(自我报告的收入)。

结果

Econ-QOL 短式评分的内部一致性信度极好(所有 Cronbach's alphas≥.92)。评分没有下限或上限效应。有收敛和判别效度的证据,Econ-QOL 评分与自我报告的收入关系最强(收敛效度证据),与其他测量指标的关系较弱(判别效度证据)。根据 2016 年联邦政府贫困线标准,得分“低于或可能低于”贫困线的个体报告的经济生活质量较差,相对于肯定高于贫困线的个体,支持已知群体有效性。

结论

本文确立了在 TBI 照顾者中使用 Econ-QOL 短式评分的临床实用性,并提供了证据表明,不仅在各种不同的残疾人群体(例如,脊髓损伤、中风)中,而且在照顾者中使用此类评分也是有效和适当的。

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