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电子健康记录的隐私性:文献综述

Privacy of electronic health records: a review of the literature.

作者信息

Gariépy-Saper Katherine, Decarie Nicholas

机构信息

Graduate from McGill University.

出版信息

J Can Health Libr Assoc. 2021 Apr 2;42(1):74-84. doi: 10.29173/jchla29496. eCollection 2021 Apr.


DOI:10.29173/jchla29496
PMID:35949500
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9327609/
Abstract

Privacy in the context of electronic health records (EHR) is an incredibly complex and multi-faceted topic within the LIS field. We conducted a narrative literature review and selected twenty-five articles published over the past fifteen years, which explore this topic from the perspectives of patients, doctors, medical librarians, informatics experts, records managers, and archivists. We identified themes that appeared consistently across the literature, as well as issues that differed across healthcare systems with varying levels of IT infrastructure. Significant changes have also taken place over time, especially with the development of technologies meant to protect privacy and make the widespread use of EHR possible. However, despite technological advances, many of the same problems of privacy ethics remain. Diverging opinions exist in the literature regarding how, and if, EHR systems should be established in light of these unresolved issues.

摘要

电子健康记录(EHR)背景下的隐私问题是图书情报学领域一个极其复杂且多面的话题。我们进行了一项叙述性文献综述,挑选了过去十五年间发表的二十五篇文章,这些文章从患者、医生、医学图书馆员、信息学专家、记录管理人员和档案管理员的角度探讨了这一话题。我们确定了文献中始终出现的主题,以及不同医疗系统因信息技术基础设施水平不同而存在差异的问题。随着时间推移也发生了重大变化,尤其是随着旨在保护隐私并使电子健康记录得以广泛应用的技术的发展。然而,尽管有技术进步,许多相同的隐私伦理问题仍然存在。关于鉴于这些未解决的问题应如何以及是否应建立电子健康记录系统,文献中存在不同意见。

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[2]
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[2]
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[3]
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本文引用的文献

[1]
Learning from electronic health records across multiple sites: A communication-efficient and privacy-preserving distributed algorithm.

J Am Med Inform Assoc. 2020-3-1

[2]
Understanding privacy risks when accessing electronic medical records.

Can J Anaesth. 2020-2

[3]
Ensuring electronic medical record simulation through better training, modeling, and evaluation.

J Am Med Inform Assoc. 2020-1-1

[4]
Wearable Health Technology and Electronic Health Record Integration: Scoping Review and Future Directions.

JMIR Mhealth Uhealth. 2019-9-11

[5]
A Blockchain Framework for Patient-Centered Health Records and Exchange (HealthChain): Evaluation and Proof-of-Concept Study.

J Med Internet Res. 2019-8-31

[6]
Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients.

J Med Internet Res. 2018-12-21

[7]
Data dreams: planning for the future of historical medical documents.

J Med Libr Assoc. 2018-10

[8]
Electronic Health Record Implementation: A SWOT Analysis.

Acta Med Iran. 2017-10

[9]
A review of privacy and usability issues in mobile health systems: Role of external factors.

Health Informatics J. 2017-10-9

[10]
Trust Me, I'm a Doctor: Examining Changes in How Privacy Concerns Affect Patient Withholding Behavior.

J Med Internet Res. 2017-1-4

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