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拉丁裔乳腺癌幸存者与乳腺癌相关淋巴水肿重返工作岗位的多案例研究:适应、韧性和生活质量。

A Multiple Case Study of Latina Breast Cancer Survivors Returning to Work With Breast Cancer-Related Lymphedema: Adaptation, Resilience, and Quality of Life.

机构信息

16125University of Missouri Sinclair School of Nursing, Columbia, MO, USA.

14611University of Missouri St. Louis College of Nursing, St. Louis, MO, USA.

出版信息

Hisp Health Care Int. 2022 Dec;20(4):222-230. doi: 10.1177/15404153221116755. Epub 2022 Aug 10.

DOI:10.1177/15404153221116755
PMID:35950258
Abstract

Breast cancer-related lymphedema (BCRL), a side effect of cancer treatment, may negatively impact the ability to perform work. Factors such as delayed diagnosis, late-stage disease, and a high percentage of service occupations may challenge work choices for Latinas after BCRL diagnosis. Our multiple case study explored work experiences and quality of life (QOL) for Hispanic/Latina survivors. Participants completed demographic and short form-36 (SF-36) surveys. Semi-structured interviews focused on how work environment, self-management, and QOL were influenced by BCRL. Thematic analysis of cases used In Vivo and descriptive coding and constant cross-case comparative methods. Analysis illustrated how Hispanic/Latina survivors perceive the influence of BCRL on work experience as requiring adaptation and personal resilience. Participants identified BCRL knowledge gap challenges and described coping with physical, psychosocial, and work activity changes. They described creative work adaptations and discussed BCRL's impact on both positive and negative interpersonal perceptions. Strong support from family, friends, and colleagues contributed to improved QOL and continued work activities. Future research should incorporate coping strategies and creative management of BCRL to optimize work activities across the lifespan. These strategies can provide guidance for the creation of survivorship care plans, education of healthcare professionals (HCPs), and lifelong occupational support.

摘要

乳腺癌相关淋巴水肿(BCRL)是癌症治疗的一种副作用,可能会降低患者的工作能力。诊断延迟、疾病晚期和服务行业比例高的因素可能会对 BCRL 诊断后的拉丁裔女性的工作选择构成挑战。我们的多项案例研究探讨了西班牙裔/拉丁裔幸存者的工作经历和生活质量(QOL)。参与者完成了人口统计和简明 36 项健康调查(SF-36)问卷。半结构化访谈的重点是工作环境、自我管理以及 BCRL 如何影响 QOL。使用现场和描述性编码以及恒定的跨案例比较方法对案例进行主题分析。分析说明了西班牙裔/拉丁裔幸存者如何感知 BCRL 对工作经历的影响,认为这需要适应和个人韧性。参与者确定了 BCRL 知识差距挑战,并描述了应对身体、心理社会和工作活动变化的方法。他们描述了创造性的工作适应,并讨论了 BCRL 对积极和消极人际关系感知的影响。来自家人、朋友和同事的大力支持有助于提高 QOL 和持续的工作活动。未来的研究应纳入应对策略和 BCRL 的创造性管理,以优化整个生命周期的工作活动。这些策略可以为生存护理计划的制定、医疗保健专业人员(HCP)的教育以及终身职业支持提供指导。

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