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情绪剧变:罹患危及生命疾病患儿的母亲预期悲痛的本质:一项定性研究。

Emotional upheaval, the essence of anticipatory grief in mothers of children with life threatening illnesses: a qualitative study.

机构信息

Student Research Committee, Departmant of Medical-Surgical Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Department of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

出版信息

BMC Psychol. 2022 Aug 11;10(1):196. doi: 10.1186/s40359-022-00904-7.

Abstract

INTRODUCTION

Life-threatening illnesses in childhood are considered a crisis for the whole family, especially for the mother, which leads to experiencing different degrees of grief and emotional-behavioral problems.

OBJECTIVE

The present study is conducted with the aim of explaining the concept of anticipatory grief from the perspective of the mothers of the children with life-threatening illnesses.

METHODS

This qualitative study is part of a sequential exploratory research for model development in the field of anticipatory grief, which was conducted using conventional content analysis method. The data were collected through in-depth semi-structured interviews with 19 mothers of the children with life-threatening illnesses living in Shiraz and Tehran, who were selected through purposive sampling with maximum variation. When data saturation were achieved, the data were codified by MAXQDA-10 software and analyzed using Graneheim and Lundman's approach.

FINDINGS

Data analysis resulted in the identification of 8 subcategories including shock, irritability, fear of losing, feeling guilty, uncertainty, hopelessness, loneliness and isolation, and mourning without a coffin, all forming the major theme emotional upheaval.

DISCUSSION AND CONCLUSION

As the result of being in a situation of imminent and possible loss of her child, the mother experiences different responses of sadness and sorrow and suffers the consequences the core of which is consisted of emotional upheaval. Therefore, by explaining the behaviors related to anticipatory grief, efficient and effective interventions can be designed to improve coping among this group of mothers.

摘要

简介

儿童时期的危及生命的疾病被认为是整个家庭的危机,尤其是对母亲而言,这会导致其经历不同程度的悲伤和情绪行为问题。

目的

本研究旨在从患有危及生命疾病的儿童的母亲的角度解释预期悲伤的概念。

方法

这是一项定性研究,是预期悲伤领域模型开发的序贯探索性研究的一部分,采用常规内容分析方法进行。通过深入的半结构化访谈,从设拉子和德黑兰的 19 名患有危及生命疾病的儿童的母亲那里收集了数据,这些母亲是通过最大变异的目的抽样选择的。当达到数据饱和时,使用 MAXQDA-10 软件对数据进行编码,并采用 Graneheim 和 Lundman 的方法进行分析。

结果

数据分析确定了 8 个子类别,包括震惊、易怒、害怕失去、内疚感、不确定性、绝望、孤独和孤立以及无棺之葬,所有这些都构成了主要主题情感剧变。

讨论和结论

由于母亲处于孩子即将或可能失去的情况下,会对悲伤和悲痛产生不同的反应,并承受其后果,核心是情感剧变。因此,通过解释与预期悲伤相关的行为,可以设计有效的干预措施来改善这群母亲的应对能力。

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