University of Louisville School of Medicine, Louisville, KY, USA.
University of Louisville Health, Frazier Rehabilitation Institute, Louisville, KY, USA.
J Huntingtons Dis. 2022;11(4):415-419. doi: 10.3233/JHD-220547.
The coronavirus pandemic saw technology evolve as outpatient clinics faced restriction of in-person visits. Reliance on telemedicine using two-way audio-video communication significantly increased. Telemedicine was observed to be convenient, cost-effective, reduced no-show rates, and fostered sustained engagement. Enhanced flexibility from short notice scheduling benefitted patients and their caregivers. Greater time value was perceived by patients, and reduced reliance on caregivers. Disadvantages included barriers of access to internet connectivity or equipment.
We aimed to retrospectively survey patients with Huntington's disease (HD) seen via telehealth in our HDSA Center for Excellence Multidisciplinary clinic. We evaluated usability, learnability, interface quality, reliability, and future use.
This qualitative survey used the 21-item Telehealth Usability Questionnaire. Close-ended responses ranged from strongly disagree to strongly agree scored on Likert scale (1 through 7). Averages were calculated to examine attitudes towards telemedicine. Spearman correlation test was performed to detect attitude biases between patients and caregivers.
Respondents were more likely than not to strongly agree with survey statements. Average attitude score of 5.92 (range 2.95-7.00) suggested favorability and improved convenience when telehealth was used in complement to in-person visits, without detriment to patient-provider communication. Spearman correlation coefficient between patient and family/caregiver groups was 0.023, which is below the cutoff of 0.344 for a = 0.05 at N = 24. This suggests there was no bias between patient and caregiver attitudes.
This study demonstrated telehealth is favored by caregivers and patients with HD. This population with specific physical, cognitive and psychiatric needs can benefit from adaptive systems that enhance compliance.
在冠状病毒大流行期间，由于门诊诊所限制了面对面就诊，技术得到了发展。双向音频-视频通信的远程医疗的使用显著增加。远程医疗被认为具有方便、经济高效、降低失约率以及促进持续参与的优势。从通知到预约的时间缩短，提高了患者及其护理人员的灵活性。患者认为时间价值更高，对护理人员的依赖减少。缺点包括互联网连接或设备的接入障碍。
我们旨在通过我们的亨廷顿舞蹈症协会卓越中心多学科诊所对接受远程医疗的亨廷顿舞蹈症患者进行回顾性调查。我们评估了可用性、易学性、界面质量、可靠性和未来使用情况。
这项定性调查使用了 21 项远程医疗可用性问卷。封闭式回答从强烈不同意到强烈同意，评分采用李克特量表（1 到 7）。计算平均值以检查对远程医疗的态度。采用斯皮尔曼相关检验检测患者和护理人员之间的态度偏差。
回答者更倾向于强烈同意调查陈述。平均态度得分为 5.92（范围 2.95-7.00），表明在补充面对面就诊的同时使用远程医疗时，患者的便利性得到改善，同时不会损害患者与提供者的沟通。患者和家庭/护理人员组之间的斯皮尔曼相关系数为 0.023，低于 N=24 时 a=0.05 的 0.344 的截止值。这表明患者和护理人员的态度之间没有偏见。
这项研究表明，远程医疗受到亨廷顿舞蹈症患者及其护理人员的青睐。这一具有特殊身体、认知和精神需求的人群可以受益于增强依从性的自适应系统。
