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“我现在希望每一分钟都过得有意义”:新冠疫情封锁限制解除后,患有痴呆症的人和他们的护理伙伴对重新参加面对面团体会议的看法和体验。

'I want every minute to be worthwhile now': The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restrictions.

机构信息

School of Health and Society, 7046University of Salford, Salford, UK.

Salford Institute for Dementia, 7046University of Salford, Salford, UK.

出版信息

Dementia (London). 2022 Nov;21(8):2442-2457. doi: 10.1177/14713012221118768. Epub 2022 Aug 16.

Abstract

COVID-19 and the resulting limitations on freedom of movement has been difficult for many, including individuals living with dementia and those who provide support and care. In the summer of 2021, England's national lockdown measures eased, and regulations were amended to allow indoor social gatherings. With this enabling a return to in-person meetings, this study explored the experiences of people living with dementia and current and former care partners who had previously attended groups at Salford Institute for Dementia (UK). Two phases of research were conducted. In the first phase, during the summer of 2020, telephone interviews were utilised to ask participants ( = 13) about their views of re-engagement and how the in-person groups might be best reintroduced. Phase two began in the summer of 2021, where mood questionnaires ( = 10) were administered and observations conducted to explore how participants experienced the return to in-person meetings. Thematic analysis resulted in the construction of three overarching themes: planning for and the reality of transitioning; safety versus autonomy; and tensions and complexities of life in the 'new normal'. Despite initial concerns about their reintegration into the community, participants all enjoyed resuming in-person meetings. An inclusive and consultative approach to re-engagement allowed all participants to feel valued, safe, and informed about their return to campus. However, individuals living with dementia and care partners experienced the transition to re-engagement in different ways and their perceptions shifted over time. We therefore highlight the complexities of responding to different perceptions of risk and safety, while also promoting engagement and inclusivity after a period of social isolation. In this paper, we consider implications for the re-integration of individuals with dementia and their care partners into in-person social groups and propose further avenues for research.

摘要

COVID-19 及其导致的行动自由限制对许多人来说都是困难的,包括患有痴呆症的个体和为他们提供支持和护理的人。2021 年夏天,英国的全国封锁措施放宽,规定进行了修订,允许进行室内社交聚会。随着这一规定的实施,人们可以恢复面对面的会议,本研究探讨了患有痴呆症的人和以前参加过索尔福德痴呆症研究所(英国)小组的当前和以前的护理伙伴的经历。进行了两个阶段的研究。在第一阶段,2020 年夏天,利用电话采访询问参与者(=13 人)对重新参与的看法以及如何最好地重新引入面对面小组。第二阶段始于 2021 年夏天,在此期间,管理了情绪问卷(=10 人)并进行了观察,以探讨参与者如何体验返回面对面会议。主题分析导致构建了三个总体主题:过渡的规划和现实;安全与自主;以及“新常态”下生活的紧张和复杂性。尽管最初对重新融入社区感到担忧,但所有参与者都很享受恢复面对面会议。重新参与的包容性和协商性方法使所有参与者都感到自己受到重视、安全并了解他们返回校园的情况。然而,患有痴呆症的个体和护理伙伴以不同的方式体验到重新参与的过渡,他们的看法随着时间的推移而变化。因此,我们强调了应对不同风险和安全感知的复杂性,同时在经历了一段时间的社会隔离后,促进参与和包容性。在本文中,我们考虑了将痴呆症患者及其护理伙伴重新融入面对面社交团体的影响,并提出了进一步研究的途径。

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Dementia in the COVID-19 Period.新冠疫情期间的痴呆症
J Alzheimers Dis. 2020;75(4):1071-1072. doi: 10.3233/JAD-200609.

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