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规范临终关怀:英格兰和荷兰利物浦关怀路径的民族志分析。

Standardising care of the dying: An ethnographic analysis of the Liverpool Care Pathway in England and the Netherlands.

机构信息

School of Health, Wellbeing and Social Care, The Open University, Milton Keynes, UK.

Institute of Cultural Anthropology and Development Sociology, Leiden University, Leiden, The Netherlands.

出版信息

Sociol Health Illn. 2022 Nov;44(9):1445-1460. doi: 10.1111/1467-9566.13529. Epub 2022 Aug 19.

Abstract

The Liverpool Care Pathway for the Dying Patient (LCP) was a prominent set of guidance in the late 2000s and early 2010s within palliative and end-of-life care. Developed in England to improve the care of dying patients, it was later adopted in 20 counties. After a public scandal, it was removed from practice in England but remains in other locations, including the Netherlands. Drawing on two sets of ethnographic data, from England and the Netherlands, we consider the ways in which the LCP was engaged with as a form of standardisation aimed at improving practice, how it was deployed in relation to other forms of knowledge, and the political and moral statements that are being made through the (selective) use of it. Looking into the use of the LCP shows that, while the LCP attempts to standardise some of the values associated with palliative care, there are significant differences between how these standardised values are then enacted in different institutional and national contexts and by different individual care professionals. We conclude that the LCP was used to impart moral values, establish protocols of care, and demonstrate professionalism, showing the multiplicity of the use of standards in healthcare practice.

摘要

利物浦临终关怀路径(LCP)是 21 世纪末至 21 世纪 10 年代在姑息治疗和临终关怀领域的一套重要指南。该路径由英国开发,旨在改善临终患者的护理,后来被 20 个国家采用。在一场公共丑闻之后,它在英国被停止使用,但仍在其他地方使用,包括荷兰。我们借鉴了来自英国和荷兰的两组民族志数据,考虑了 LCP 作为一种旨在改善实践的标准化形式的应用方式,它与其他形式的知识的关系,以及通过(选择性)使用它所做出的政治和道德声明。研究 LCP 的使用情况表明,尽管 LCP 试图标准化与姑息治疗相关的一些价值观,但在不同的机构和国家背景下,以及不同的个体护理专业人员中,这些标准化价值观的实施方式存在显著差异。我们的结论是,LCP 被用来传授道德价值观、建立护理协议,并展示专业性,展示了标准在医疗保健实践中的多重用途。

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