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非裔美国人对参与健康研究的看法,尽管存在历史上的不信任。

African American Perceptions of Participating in Health Research Despite Historical Mistrust.

机构信息

Department of Nursing, Towson University, Towson, Maryland (Dr Statler); University of Virginia School of Nursing, Charlottesville (Drs Wall, Jones, and Kools); Department of Public Health Sciences, University of Virginia School of Medicine, Charlottesville (Dr Richardson); and University of Virginia Cancer Center, Charlottesville (Dr Jones).

出版信息

ANS Adv Nurs Sci. 2023;46(1):41-58. doi: 10.1097/ANS.0000000000000435. Epub 2022 Aug 19.

DOI:10.1097/ANS.0000000000000435
PMID:35984948
Abstract

A qualitative descriptive approach examined perspectives of African Americans (AA) on their participation in health research despite historical research mistreatment. Nineteen AAs participated in semistructured interviews that provided data that were analyzed using thematic analysis. Salient themes included race concordance, being respected and valued by the researcher, research participation motivators, and cultural experiences of racism in health care. This study challenges dominant ideology that AAs are unwilling to participate in research and offers solutions to promote research inclusive of their perceptions. Therefore, researchers need to design research with inclusiveness and transparency that openly displays how research will impact future generations.

摘要

本研究采用定性描述方法,探讨了非裔美国人(AA)对参与健康研究的看法,尽管他们曾经历过历史上的研究虐待。19 名 AA 参与了半结构化访谈,提供了数据,这些数据通过主题分析进行了分析。突出的主题包括种族一致性、被研究人员尊重和重视、研究参与的动机,以及在医疗保健中经历的种族主义文化。这项研究挑战了主导意识形态,即非裔美国人不愿意参与研究,并提供了促进研究的解决方案,以纳入他们的观点。因此,研究人员需要设计具有包容性和透明度的研究,公开展示研究将如何影响后代。

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