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非癌症患者在医院去世的情况更糟糕。一项针对丧亲亲属观点的区域性横断面调查。

Dying in hospital is worse for non-cancer patients. A regional cross-sectional survey of bereaved relatives' views.

机构信息

Department of Palliative Medicine, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.

Institute for Medical Sociology, Health Services Research, and Rehabilitation Science (IMVR), Faculty of Human Sciences and Faculty of Medicine, University of Cologne, Cologne, Germany.

出版信息

Eur J Cancer Care (Engl). 2022 Nov;31(6):e13683. doi: 10.1111/ecc.13683. Epub 2022 Aug 22.

Abstract

OBJECTIVE

The aim of the study is to examine differences in hospital care between patients with cancer and non-cancer conditions in their dying phase, perceived by bereaved relatives.

METHODS

A retrospective cross-sectional post-bereavement survey, with the total population of 351 deceased, 91 cancer patients and 46 non-cancer patients, who spent their last 2 days of life in hospital. A validated German version of the VOICES-questionnaire ('VOICES-LYOL-Cologne') was used.

RESULTS

There were substantial differences between the two groups in the rating of sufficient practical care such as pain relief or support to eat or drink (p = 0.005) and sufficient emotional care needs (p = 0.006) and in the quality of communication with healthcare professionals (p < 0.001), with non-cancer patients scoring lowest in all these dimensions.

CONCLUSION

In all surveyed dimensions on the quality of care in the dying phase, non-cancer patients' relatives rated the provided care worse than those of cancer patients. To compensate any differences in care in the dying phase between diagnosis groups, hospital care should be provided as needs-oriented and non-indication-specific.

摘要

目的

本研究旨在通过死者亲属的视角,调查临终阶段癌症患者与非癌症患者在医院护理方面的差异。

方法

这是一项回顾性的横断面向后调查,总共有 351 名死者,91 名癌症患者和 46 名非癌症患者,他们在住院的最后 2 天里度过了生命的最后时光。使用了经过验证的德国版 VOICES 问卷(“VOICES-LYOL-Cologne”)。

结果

在疼痛缓解或支持进食或饮水等实际护理需求(p=0.005)和足够的情感护理需求(p=0.006)以及与医疗保健专业人员的沟通质量方面(p<0.001),两组之间存在实质性差异,非癌症患者在所有这些维度上的得分最低。

结论

在临终阶段护理质量的所有调查维度上,非癌症患者的亲属对所提供的护理的评价都不如癌症患者。为了弥补诊断组之间临终阶段护理方面的任何差异,医院护理应该以需求为导向,而非特定于指征。

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