为癌症患儿绘制通往高质量临终关怀的道路。
Charting a path to high-quality end-of-life care for children with cancer.
机构信息
Department of Pediatrics, Yale School of Medicine, New Haven, Connecticut, USA.
Yale Cancer Outcomes, Public Policy and Effectiveness Research Center, New Haven, Connecticut, USA.
出版信息
Cancer. 2022 Oct;128(20):3586-3592. doi: 10.1002/cncr.34419. Epub 2022 Aug 25.
Abstract
There are currently no quality measures for end-of-life (EOL) care for children with cancer. In this commentary, we address why it is essential that we develop quality measures for EOL care for children with cancer, review the progress made to date, and chart the course for future work in this area.
摘要
目前尚无针对癌症儿童临终关怀的质量衡量标准。在这篇评论中，我们探讨了为什么为癌症儿童临终关怀制定质量衡量标准至关重要，回顾了迄今为止取得的进展，并为该领域的未来工作规划了路线。
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本文引用的文献
1
Guidance for Pediatric End-of-Life Care.
Pediatrics. 2022 May 1;149(5). doi: 10.1542/peds.2022-057011.
2
Face-Validated Quality Indicators for Appropriateness of End-of-Life Care in Children with Serious Illness: A Study Using the RAND/University of California at Los Angeles Appropriateness Method.
J Pediatr. 2022 Feb;241:141-146.e2. doi: 10.1016/j.jpeds.2021.09.062. Epub 2021 Oct 7.
3
Early palliative care is associated with less intense care in children dying with cancer in Alabama: A retrospective, single-site study.
Cancer. 2022 Jan 15;128(2):391-400. doi: 10.1002/cncr.33935. Epub 2021 Oct 6.
4
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer.
JCO Oncol Pract. 2022 Mar;18(3):e372-e382. doi: 10.1200/OP.21.00447. Epub 2021 Oct 6.
5
Community Hospice Nurses' Perspectives on Needs, Preferences, and Challenges Related to Caring for Children With Serious Illness.
JAMA Netw Open. 2021 Oct 1;4(10):e2127457. doi: 10.1001/jamanetworkopen.2021.27457.
6
Reenvisioning End-of-Life Care Quality Measurement for Adolescents and Young Adults With Cancer-Novel Patient-Centered Indicators and Approaches.
JAMA Netw Open. 2021 Aug 2;4(8):e2122323. doi: 10.1001/jamanetworkopen.2021.22323.
7
Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer.
JAMA Netw Open. 2021 Aug 2;4(8):e2121888. doi: 10.1001/jamanetworkopen.2021.21888.
8
Sociodemographic and hospital-based predictors of intense end-of-life care among children, adolescents, and young adults with hematologic malignancies.
Cancer. 2021 Oct 15;127(20):3817-3824. doi: 10.1002/cncr.33764. Epub 2021 Jun 29.
9
Adults are just big children: What we can learn about quality end-of-life care from pediatrics.
Cancer. 2021 Jul 15;127(14):2393-2396. doi: 10.1002/cncr.33548. Epub 2021 Mar 30.
10
Quality measures for end-of-life care for children with cancer: A modified Delphi approach.
Cancer. 2021 Jul 15;127(14):2571-2578. doi: 10.1002/cncr.33546. Epub 2021 Mar 30.
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