Suppr超能文献

早期干预对婴儿期视力丧失儿童的影响——家长视角。

The impact of early intervention on a child with vision loss in infancy - A parental perspective.

机构信息

Department of Retina, PBMA's H. V. Desai Eye Hospital, Pune, Maharashtra, India.

出版信息

Indian J Ophthalmol. 2022 Sep;70(9):3377-3381. doi: 10.4103/ijo.IJO_412_22.

Abstract

PURPOSE

: To assess the impact of early intervention services provided to children with visual loss and to report how parents perceive them in terms of a child's development and the family dynamics.

METHODS

: A qualitative descriptive study was conducted on a purposively selected sample of 15 children with severe visual impairment, availing early intervention services at a tertiary care facility in Pune, Maharashtra. Data were collected by conducting in-depth interviews of the parents with the help of a semi-structured interview topic guide. Participants were asked in detail about how and whether various components of the early intervention program (EIP) had an impact on their child. The interviews were audio-recorded, transcribed, and translated into English, and the resultant textual data were analyzed using the qualitative research software NVIVO 12 to identify themes and sub-themes under each domain.

RESULTS

: A total of 15 children were included in the study, with ages ranging from 13 months to 5 years. All the children included in the study suffered from severe visual impairment in infancy (Vision 3/60 - PL). In the course of this EIP, the majority of the children showed consistent progress in various aspects of child development. According to the parents, the most beneficial components of EIP were visual stimulation exercises, an improvised teaching methodology, and counseling services.

CONCLUSION

: Almost all the parents included in the study reported a positive change in the behavior and development of the child as well as improved family dynamics after implementation of EIP.

摘要

目的

评估为视力丧失儿童提供的早期干预服务的影响,并报告父母如何感知这些服务对儿童发展和家庭动态的影响。

方法

在马哈拉施特拉邦浦那的一家三级护理机构,对 15 名患有严重视力障碍的儿童进行了一项有针对性选择的样本的定性描述研究。通过对父母进行深入访谈,利用半结构化访谈主题指南收集数据。详细询问了父母各种早期干预计划(EIP)的各个组成部分是否以及如何对其孩子产生影响。访谈进行了录音、转录和翻译成英文,并使用定性研究软件 NVIVO 12 对文本数据进行分析,以确定每个领域下的主题和子主题。

结果

本研究共纳入 15 名儿童,年龄从 13 个月至 5 岁不等。所有纳入研究的儿童在婴儿期均患有严重视力障碍(视力 3/60-PL)。在该 EIP 的过程中,大多数儿童在儿童发展的各个方面都表现出持续的进步。根据父母的说法,EIP 中最有益的组成部分是视觉刺激练习、即兴教学方法和咨询服务。

结论

几乎所有参与研究的父母都报告说,实施 EIP 后,孩子的行为和发育以及家庭动态都有了积极的变化。

相似文献

1
The impact of early intervention on a child with vision loss in infancy - A parental perspective.
Indian J Ophthalmol. 2022 Sep;70(9):3377-3381. doi: 10.4103/ijo.IJO_412_22.
6
Parents' views about factors facilitating their involvement in the oral early intervention services provided for their children with hearing loss in Kuwait.
Int J Pediatr Otorhinolaryngol. 2020 Jan;128:109717. doi: 10.1016/j.ijporl.2019.109717. Epub 2019 Oct 11.
7
Parental experiences with their child's eating disorder treatment journey.
J Eat Disord. 2021 Jul 27;9(1):92. doi: 10.1186/s40337-021-00449-x.
8
Barriers to family intervention to promote child and adolescent vision health: A qualitative study based on community practice in China.
J Pediatr Nurs. 2022 Sep-Oct;66:e76-e81. doi: 10.1016/j.pedn.2022.05.007. Epub 2022 May 18.
9
Bilateral childhood visual impairment: child and parent concerns.
J AAPOS. 2017 Jun;21(3):183.e1-183.e7. doi: 10.1016/j.jaapos.2017.05.007. Epub 2017 May 17.
10
Parents' intentions toward including their children with visual impairments in physical activities.
Disabil Rehabil. 2020 Mar;42(5):667-678. doi: 10.1080/09638288.2018.1505969. Epub 2019 Jan 7.

引用本文的文献

1
The approach to the screening for visual impairment of children and adolescents by family medicine physicians in the Eastern Region of Saudi Arabia.
J Family Community Med. 2025 Jul-Sep;32(3):198-206. doi: 10.4103/jfcm.jfcm_275_24. Epub 2025 Jul 14.
2
Eye health knowledge, attitude, and practice among special school managers and barriers to eye health programmes in special schools in Hyderabad, India.
PLOS Glob Public Health. 2024 Aug 28;4(8):e0002124. doi: 10.1371/journal.pgph.0002124. eCollection 2024.

本文引用的文献

3
The effects of preterm birth on visual development.
Clin Exp Optom. 2018 Jan;101(1):4-12. doi: 10.1111/cxo.12578. Epub 2017 Sep 3.
4
Neuroplasticity and amblyopia: vision at the balance point.
Curr Opin Neurol. 2017 Feb;30(1):74-83. doi: 10.1097/WCO.0000000000000413.
5
The National Rural Health Mission in India: its impact on maternal, neonatal, and infant mortality.
Semin Fetal Neonatal Med. 2015 Oct;20(5):315-20. doi: 10.1016/j.siny.2015.06.003. Epub 2015 Sep 15.
6
Global data on visual impairment in the year 2002.
Bull World Health Organ. 2004 Nov;82(11):844-51. Epub 2004 Dec 14.
7
The magnitude and cost of global blindness: an increasing problem that can be alleviated.
Am J Ophthalmol. 2003 Apr;135(4):471-6. doi: 10.1016/s0002-9394(02)02110-4.
9
A new measure of parent satisfaction with medical care provided in the neonatal intensive care unit.
J Clin Epidemiol. 1996 Mar;49(3):313-8. doi: 10.1016/0895-4356(95)00531-5.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验