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["如果你再也无法外出走动……”居家、轮椅依赖和卧床概念的有效性及区分:一项德尔菲研究]

["If you're no longer able to get out and about …" Validity and differentiation of the concepts of being homebound, wheelchair-bound and bedridden: A Delphi study].

作者信息

Schirghuber Johannes, Köck-Hódi Sabine, Schrems Berta

机构信息

Universität Wien, Institut für Pflegewissenschaft, Wien, Österreich.

Universität Wien, Institut für Pflegewissenschaft, Wien, Österreich.

出版信息

Z Evid Fortbild Qual Gesundhwes. 2022 Sep;173:1-16. doi: 10.1016/j.zefq.2022.07.003. Epub 2022 Aug 26.

Abstract

INTRODUCTION

Being place-bound, including the dimensions of being homebound, wheelchair-bound and bedridden, has multifactorial consequences and carries an increased risk of mortality. The prevalence of being homebound and bedridden is high. Valid concepts are necessary to recognize the dimensions of being place-bound in practice and to act preventively or reductively. In preliminary studies, literature-based concept analyses of being homebound, wheelchair-bound and bedridden were carried out and a conceptual model with the following six characteristics was developed: life-space confinement, in need of help, powerlessness, mobility limitation, endurance, weakness. The aim of this study was to test the concept by differentiating and validating the dimensions of the model with regard to characteristics, antecedents, and risk factors.

METHOD

Concept testing was carried out employing the Delphi method based on Fehring's DDV (Differential Diagnostic Validation) model. The CREDES guideline was used for reporting.

RESULTS

Apart from the characteristic of endurance in connection with being wheelchair-bound, general approval was achieved for all six characteristics. Mobility limitation and weakness are the main characteristics of differentiation. Antecedents (physiological instability, physical immobility) and risk factors (illness, complexity, stress, endogenous/exogenous booster) were also consented. Regarding the concepts of being wheelchair-bound and bedridden, there was little consensus on the antecedents of physiological instability. The antecedents of physical immobility through hand strength and hand use received no consensus in any of the dimensions. The German terms of the dimensions, originally coined in English, were confirmed: Hausgebundenheit (being homebound) 78.26%, Rollstuhlgebundenheit (being wheelchair-bound) 60%, Bettlägerigkeit (being bedridden) 80%.

DISCUSSION

With a few exceptions, a high level of consensus regarding the approval/rejection of the characteristics, antecedents, and risk factors of the dimensions of being homebound and bedridden is shown. This unambiguity is not evident in the dimension of wheelchair-boundness. One possible cause is the ambiguity of the term itself (active/passive/permanent/temporary wheelchair use). The rejection of physical immobility through hand strength/use is to be seen critically since this is essential in independent movement of the wheelchair and when turning/sitting down in bed. The fact that bedridden people, on the one hand, need a wheelchair to move and, on the other hand, cannot maintain a sitting position, must also be questioned. If an upright sitting position can be maintained, this must be promoted to support orthostatic stability, which would correspond to being wheelchair-bound.

CONCLUSION

The validity of the dimensions of the model of being place-bound is an essential contribution to evidence-based health care and provides a basis for the development of nursing and interdisciplinary interventions to prevent and reduce being place-bound. Mobility does not only have a major impact on the individual quality of life, but also on the resources of the health care system. Therefore, a valid concept is not only important for science and research, but also for health economy and health policy. However, further studies on validity testing in clinical settings including those affected are necessary.

摘要

引言

受限于特定场所,包括居家受限、轮椅依赖和卧床不起等情况,具有多方面的影响,并伴有更高的死亡风险。居家受限和卧床不起的发生率很高。在实践中,需要有效的概念来识别受限于特定场所的各个方面,并采取预防或减轻措施。在初步研究中,对居家受限、轮椅依赖和卧床不起进行了基于文献的概念分析,并开发了一个具有以下六个特征的概念模型:生活空间受限、需要帮助、无能为力、行动受限、耐力、虚弱。本研究的目的是通过区分和验证模型各维度在特征、前提因素和风险因素方面的内容来检验该概念。

方法

采用基于费林的DDV(差异诊断验证)模型的德尔菲法进行概念测试。报告遵循CREDES指南。

结果

除了与轮椅依赖相关的耐力特征外,所有六个特征均获得普遍认可。行动受限和虚弱是主要的区分特征。前提因素(生理不稳定、身体不活动)和风险因素(疾病、复杂性、压力、内源性/外源性促进因素)也得到了认可。关于轮椅依赖和卧床不起的概念,在生理不稳定的前提因素方面几乎没有达成共识。通过手部力量和手部使用导致身体不活动的前提因素在任何维度上都未获得共识。最初用英文提出的各维度的德语术语得到了确认:Hausgebundenheit(居家受限)78.26%,Rollstuhlgebundenheit(轮椅依赖)60%,Bettlägerigkeit(卧床不起)80%。

讨论

除了少数例外情况,在居家受限和卧床不起各维度的特征、前提因素和风险因素的认可/拒绝方面显示出高度的共识。在轮椅依赖维度上,这种明确性并不明显。一个可能的原因是该术语本身的模糊性(主动/被动/永久/临时使用轮椅)。对手部力量/使用导致身体不活动的拒绝应受到批判性看待,因为这在轮椅的独立移动以及在床上翻身/坐下时至关重要。卧床不起的人一方面需要轮椅来移动,另一方面又无法保持坐姿,这一事实也必须受到质疑。如果能够保持直立坐姿,就必须加以促进以支持体位稳定性,这将等同于轮椅依赖。

结论

受限于特定场所模型各维度的有效性对循证医疗保健做出了重要贡献,并为制定护理和跨学科干预措施以预防和减少受限于特定场所提供了基础。行动能力不仅对个人生活质量有重大影响,也对医疗保健系统的资源有影响。因此,一个有效的概念不仅对科学研究很重要,对健康经济和健康政策也很重要。然而,有必要在包括受影响者在内的临床环境中进行进一步的有效性测试研究。

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