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跟骨骨软骨病患者在潘塞提治疗法支具矫正期的生活质量。

Quality of life of clubfoot patients during the brace period of the Ponseti method.

机构信息

Department of Orthopaedic Surgery and Trauma, Máxima MC, Postbus 7777, 5500 MB Veldhoven, The Netherlands; Department of Orthopaedic Surgery and Trauma, Catharina Hospital, Postbus 1350, 5602 ZA Eindhoven, The Netherlands.

Department of Orthopaedic Surgery and Trauma, Catharina Hospital, Postbus 1350, 5602 ZA Eindhoven, The Netherlands.

出版信息

Foot (Edinb). 2022 Sep;52:101895. doi: 10.1016/j.foot.2021.101895. Epub 2022 Jan 13.

DOI:10.1016/j.foot.2021.101895
PMID:36049263
Abstract

PURPOSE

Quantifying the quality of life in clubfoot patients during bracing following the Ponseti method compared with healthy controls.

METHODS

Data collected during the brace period of the Ponseti method and of a reference sample was retrospectively analyzed to investigate health-related quality of life scale (TAPQOL) in clubfoot patients compared with healthy controls. The TAPQOL instrument consists of 12 subscales comprising the 4 domains of health-related quality of life namely physical, social, emotional and cognitive functioning.

RESULTS

Responses of 80 parents of clubfoot patients and 238 parents of healthy controls were analyzed. On average both study groups scored high on the 4 domains of the TAPQOL instrument. The clubfoot group scored significantly (p<0.0125) lower on the subscales motor functioning, sleep, lung and skin problems during bracing. No difference was observed between the study groups in the year the bracing had ended.

CONCLUSION

Dutch clubfoot patients show an overall good health related quality of life. However, during the brace phase of the Ponseti treatment they score lower in subscales in the physical functioning domain. These results can be used in the counselling of parent and might alleviate some concerns that parents have about the bracing period.

LEVEL OF EVIDENCE

Level III, Case control study.

摘要

目的

比较潘塞提(Ponseti)方法治疗后支具期马蹄内翻足患者与健康对照组的生活质量。

方法

回顾性分析潘塞提方法支具期和参考样本的数据,以调查马蹄内翻足患者与健康对照组的健康相关生活质量量表(TAPQOL)。TAPQOL 量表由 12 个分量表组成,包括健康相关生活质量的 4 个领域,即身体、社会、情感和认知功能。

结果

分析了 80 名马蹄内翻足患者家长和 238 名健康对照组家长的反应。两组研究对象在 TAPQOL 量表的 4 个领域的得分均较高。在支具治疗期间,马蹄内翻足组在运动功能、睡眠、肺部和皮肤问题等子量表上的得分明显较低(p<0.0125)。在支具治疗结束的那一年,两组之间没有观察到差异。

结论

荷兰马蹄内翻足患者总体生活质量良好。然而,在潘塞提治疗的支具阶段,他们在身体功能领域的子量表上得分较低。这些结果可用于家长咨询,可能减轻家长对支具期的一些担忧。

证据水平

III 级,病例对照研究。

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