Departments of Palliative and Rehabilitation Medicine, Calvary and St George Hospitals, Sydney, NSW, Australia; The Faculty of Medicine, St George Clinical School, The University of New South Wales, Sydney, NSW, Australia.
Departments of Palliative and Rehabilitation Medicine, Calvary and St George Hospitals, Sydney, NSW, Australia; The Faculty of Medicine, St George Clinical School, The University of New South Wales, Sydney, NSW, Australia.
Handb Clin Neurol. 2022;190:33-59. doi: 10.1016/B978-0-323-85029-2.00010-5.
Neurodegenerative conditions are prominent contributors to both morbidity and mortality worldwide. They pose a significant challenge to health professionals, health systems, and the often unpaid, untrained family members and carers. The many and varied challenges encountered are best managed by a multidisciplinary neuropalliative team, as it is impossible for a single clinician to possess and deliver the wide range of skills and services required to optimally care for these patients. This chapter discusses the assembly, maintenance, and care of such a team, as well as potential difficulties and solutions in domains such as funding, training, geographical remoteness, as well as the potential lack of awareness and acceptance by colleagues. A comprehensive description of the role of all possible team members is discussed. The chapter outlines the concept, content, and potential benefits of a multidisciplinary team in neuropalliative care. Its thesis is twofold: that multidisciplinary care is vital and, second, that the sum of the whole of a team can be greater than the individual parts with respect to organization, planning, experience, and creativity of approach. With all these factors considered, and implemented wherever possible, we may all move closer to optimizing the comfort and care of our shared neuropalliative patients.
神经退行性疾病是全世界发病率和死亡率的主要原因。它们给卫生专业人员、卫生系统以及经常无偿、未经培训的家庭成员和护理人员带来了重大挑战。多学科神经姑息治疗团队可以更好地应对这些多样化和复杂的挑战,因为单个临床医生不可能拥有和提供最佳照顾这些患者所需的广泛技能和服务。本章讨论了这样一个团队的组建、维护和护理,以及在资金、培训、地理位置偏远等方面的潜在困难和解决方案,以及同事们可能缺乏意识和接受度的问题。还讨论了所有可能的团队成员的角色的全面描述。本章概述了多学科团队在神经姑息治疗中的概念、内容和潜在好处。其论点有两个:多学科护理至关重要;其次,团队的整体可以大于个体部分,在组织、规划、经验和方法的创造性方面都是如此。考虑到所有这些因素,并尽可能地实施,我们都可以更接近优化我们共同的神经姑息治疗患者的舒适度和护理。