Almugti Hani S, Shaiea Maram M, Alhammadi Yazeed M, Mawkili Razan A, Alemam Shereen, Hamas Rawabi A, Jurebi Abdulrahman M, Alharthi Siraj B, Al-Hazmi Feras I, Bali Mohai E, Asiri Haitham F, Al Jutayli Meshal A, Almohaimeed Farees Y, Owaisheer Eman M, Alaa Adeen Abdul-Qader M
Ministry of National Guard Health Affairs, King Abdullah International Medical Research Center, King Saud bin Abdul-Aziz University for Health Sciences, Jeddah, SAU.
Pharmacy, Jazan University, Jazan, SAU.
Cureus. 2022 Aug 2;14(8):e27591. doi: 10.7759/cureus.27591. eCollection 2022 Aug.
Cancer is a chronic health condition that requires long-term treatment and care. Diagnosis of cancer is a family crisis that has a bad impact on patients and their caregivers, which can worsen the quality of life of the entire family members. It would be relevant to highlight the changes in the quality of life among cancer patients' caregivers within the Saudi culture to strengthen their involvement in the plan of treating cancer patients.
To assess the needs and quality of life of Saudi cancer patients' caregivers by using the World Health Organization quality of life questionnaire WHOQOL-BREF and the Family Inventory of Needs (FIN) questionnaire for family caregivers.
Of 376 caregivers invited to participate, 270 (72%) accepted and completed the questionnaire. The study was carried out in outpatient clinics and oncology inpatient wards of Princess Noorah Oncology Center in King Abdul-Aziz Medical City Jeddah, Saudi Arabia.
The study found that 53 % of Saudi caregivers reported a good quality of life in the following domains: psychological, social relationship, and environment. On the other hand, the lower quality of life scores were stated for the physical health domain in almost two third of participants (67 %). Poor quality of life was reported among the male caregivers of the older age group who had a lower level of education and had a short term of caring (fewer than 12 months). Regarding the need assessment, most of the 20 needs items were rated important and were related to patient care. Whereas, the least important needs were related to the caregivers' health.
There was a significant association between quality of life scores and the demographic characteristics of the caregivers, addressing these factors in addition to the assessment of the caregivers' needs during medical care will provide holistically care for the patients and their caregivers to increase their quality of life.
癌症是一种需要长期治疗和护理的慢性健康状况。癌症诊断是一场家庭危机，会对患者及其护理人员产生不良影响，进而可能使整个家庭成员的生活质量恶化。在沙特文化背景下突出癌症患者护理人员生活质量的变化，对于加强他们参与癌症患者治疗计划具有重要意义。
通过使用世界卫生组织生活质量问卷WHOQOL - BREF和家庭护理人员需求问卷（FIN）来评估沙特癌症患者护理人员的需求和生活质量。
在受邀参与的376名护理人员中，270名（72%）接受并完成了问卷。该研究在沙特阿拉伯吉达阿卜杜勒 - 阿齐兹国王医疗城努拉公主肿瘤中心的门诊和肿瘤住院病房进行。
研究发现，53%的沙特护理人员在心理、社会关系和环境等领域报告生活质量良好。另一方面，近三分之二的参与者（67%）在身体健康领域的生活质量得分较低。年龄较大、教育程度较低且护理期限较短（少于12个月）的男性护理人员报告生活质量较差。关于需求评估，20项需求项目中的大多数被评为重要，且与患者护理相关。而最不重要的需求与护理人员的健康有关。
生活质量得分与护理人员的人口统计学特征之间存在显著关联，除了在医疗护理期间评估护理人员的需求外，关注这些因素将为患者及其护理人员提供全面的护理，以提高他们的生活质量。
