Former Senior Advisor to Open Society Foundations' Public Health Program (D.L.), New York, USA.
Former director of the International Palliative Care Initiative (M.C.), New York, USA.
J Pain Symptom Manage. 2023 Jan;65(1):47-57. doi: 10.1016/j.jpainsymman.2022.08.020. Epub 2022 Sep 2.
Between 1998 and 2021, the Open Society Foundations (OSF) network invested around US$50 million in supporting the emerging field of palliative care worldwide, funding different approaches and interventions to advance its objective of putting palliative care on the global public health agenda.
To describe six approaches that were instrumental to the successes of Open Society Foundations' support in building the global field of palliative care. A robust discussion of lessons learnt is unfortunately not possible because Open Society Foundations did not commission a rigorous evaluation of the impacts of its investments.
This article describes these six approaches: Investing in versatile palliative care leaders at national and regional level; investing in palliative care champions within the OSF network; proactively engaging the World Health Organization (WHO) in efforts to promote palliative care; developing tools and skills to improve palliative care financing; using a human rights-based approach; and supporting self-advocacy by people with palliative care needs.
Deep, long-term investments in national and regional champions from the palliative care community and OSF's own network built palliative care leaders with well-rounded skills, knowledge and opportunities to develop their own networks. The active engagement and involvement of the WHO in efforts to advance palliative care enhanced the credibility of palliative care as a discipline as well its champions, whereas the human rights approach resulted in more diverse strategies to overcome barriers to palliative care. The focus on palliative care financing and self-advocacy showed significant promise for impact.
The approaches and strategies described helped a nascent palliative care field develop into a health service that is increasingly integrated into public health systems. Other funders and national governments can build on OSF's long term support for the palliative care field and support further integration of palliative care within public health to increase access.
1998 年至 2021 年间,开放社会基金会(OSF)网络投资约 5000 万美元用于支持全球姑息治疗领域的新兴领域,资助不同的方法和干预措施,以推进将姑息治疗纳入全球公共卫生议程的目标。
描述对开放社会基金会支持全球姑息治疗领域建设取得成功至关重要的六种方法。不幸的是,由于开放社会基金会没有委托对其投资的影响进行严格评估,因此无法进行关于经验教训的深入讨论。
本文描述了这六种方法:在国家和地区层面投资多才多艺的姑息治疗领导者;在 OSF 网络内部投资姑息治疗拥护者;积极参与世界卫生组织(WHO)努力促进姑息治疗;开发工具和技能以改善姑息治疗融资;采用基于人权的方法;并支持姑息治疗需求者的自我倡导。
对姑息治疗社区和 OSF 自身网络中的国家和地区拥护者进行深入、长期的投资,培养了具有全面技能、知识和机会的姑息治疗领导者,发展自己的网络。世卫组织积极参与和参与努力推进姑息治疗提高了姑息治疗作为一门学科及其拥护者的可信度,而人权方法则导致了更多多样化的战略来克服姑息治疗的障碍。对姑息治疗融资和自我倡导的关注显示出了显著的影响力。
所描述的方法和策略有助于一个新生的姑息治疗领域发展成为越来越融入公共卫生系统的卫生服务。其他资助者和国家政府可以借鉴 OSF 对姑息治疗领域的长期支持,并支持姑息治疗在公共卫生领域的进一步整合,以增加获得姑息治疗的机会。