Department of Nursing, Yonsei University Graduate School, Seoul, South Korea.
College of Nursing and Brain Korea 21 FOUR Project, Yonsei University, Seoul, South Korea.
Disabil Rehabil. 2023 Oct;45(20):3359-3365. doi: 10.1080/09638288.2022.2118378. Epub 2022 Sep 8.
The QUAlity of Life Assessment in Spina bifida (QUALAS) for adults (QUALAS-A) evaluates the health-related quality of life (HRQOL), reflecting the condition specificity of adults with spina bifida (SB). The study's purpose was to translate and cross-culturally adapt the QUALAS-A into Korean and validate a Korean-modified version of the QUALAS for Young Adults (QUALAS-YA-Km).
Face and content validity were evaluated in the pilot study. Internal consistency and test-retest reliability were confirmed in the main study. Factor analysis was performed, and convergent and divergent validity was verified using the World Health Organization Quality of Life assessment instrument abbreviated version (WHOQOL-BREF).
Forty-seven adults had myelomeningocele. Five items with low communality were deleted through the factor analysis, and the domains were renamed. The QUALAS-YA-Km showed good internal consistency (Cronbach's alpha 0.73-0.83) and excellent test-retest reliability (intraclass correlation coefficient 0.84-0.89). The QUALAS-YA-Km showed good convergent and divergent validity, with weak to strong correlations with the WHOQOL-BREF.
Developed with consideration of Korea's cultural characteristics, the QUALAS-YA-Km is a convenient and reliable instrument, with good internal consistency, stability, and construct validity. This can be a useful tool in clinical and research settings for HRQOL optimization in young adults with SB.Implications for RehabilitationOptimizing health-related quality of life (HRQOL) is one of the goals of people with spina bifida (SB), which requires HRQOL measurements that reflect the condition specificity of SBThe QUAlity of Life Assessment of Spina bifida for Adults (QUALAS-A) is a self-reported HRQOL questionnaire for adults with SB developed in the United States, which is used in research and clinical practiceThe present study revealed that the Korean modified version of the QUAlity of Life Assessment of Spina bifida for Young Adults (QUALAS-YA-Km), developed in consideration of the cultural characteristics of Korea, is a valid, convenient, and reliable toolThe QUALAS-YA-Km, is a useful tool that can be used in clinical and research settings for HRQOL optimization in adults with SB.
用于评估成人脊柱裂相关生活质量的 QUAlity of Life Assessment in Spina bifida（QUALAS-A）（成人 QUALAS，QUALAS-A）评估了与健康相关的生活质量（HRQOL），反映了成人脊柱裂（SB）患者的疾病特异性。本研究的目的是将 QUALAS-A 翻译并跨文化适应为韩语，并验证经过韩国文化调整的青少年脊柱裂生活质量评估问卷（QUALAS-YA-Km）。
在预试验中评估了表面效度和内容效度。在主要研究中，确认了内部一致性和重测信度。进行了因子分析，并使用世界卫生组织生活质量评估工具简表（WHOQOL-BREF）验证了收敛效度和区分效度。
共有 47 名患有脊髓脊膜膨出的成年人参与。通过因子分析删除了 5 项低公因子性的项目，并重新命名了各维度。青少年脊柱裂生活质量评估问卷韩国改良版（QUALAS-YA-Km）显示出良好的内部一致性（克朗巴赫 α 0.73-0.83）和极好的重测信度（组内相关系数 0.84-0.89）。QUALAS-YA-Km 具有良好的收敛和区分效度，与 WHOQOL-BREF 呈弱至强相关。
该问卷考虑了韩国的文化特点，开发出的 QUALAS-YA-Km 是一种方便可靠的工具，具有良好的内部一致性、稳定性和结构效度。这可为临床和研究环境中优化患有 SB 的青少年的 HRQOL 提供有用的工具。
优化与健康相关的生活质量（HRQOL）是脊柱裂患者的目标之一，这需要反映脊柱裂特异性的 HRQOL 测量方法。成人脊柱裂生活质量评估问卷（QUALAS-A）是美国开发的一种用于评估成年人 SB 患者的 HRQOL 自评问卷，已在研究和临床实践中使用。本研究表明，考虑到韩国文化特点开发的青少年脊柱裂生活质量评估问卷韩国改良版（QUALAS-YA-Km）是一种有效、方便、可靠的工具。 QUALAS-YA-Km 是一种有用的工具，可在临床和研究环境中用于优化患有 SB 的成年人的 HRQOL。
