Tarsus University, Faculty of Health Sciences, Department of Nursing, Turkey.
University of Health Sciences Dr Behcet Uz Child Disease and Surgery Training and Research Hospital, Turkey.
J Pediatr Nurs. 2022 Nov-Dec;67:107-115. doi: 10.1016/j.pedn.2022.08.015. Epub 2022 Sep 8.
This study aims to better understand the experiences of mothers of children receiving pediatric palliative care.
The qualitative phenomenological method was used to determine the mothers' experiences. The study sample included 15 mothers. Individual interviews, an introductory information form and a semi-structured interview form were used for data collection. The data were analyzed with Colaizzi's seven-step method. MAXQDA was used for coding and creating themes.
Three main themes of the interviews emerged; family experiences, social life and care in the palliative care unit. The mothers said that family relationships were affected, that they experience fear of loss, that they experience depression, that all responsibility for treatment and care lies with the mothers, and that there is no social support. Mothers said that they are in the same place as mothers of children in similar situations and that they are happy and comfortable because they have single rooms. In addition, the mothers stated that they are very afraid of the COVID-19 virus infecting their children and therefore losing their children.
The mothers experienced some problems such as fear of loss, depression, care burden, social support, exclusion, daily life, social relationships, feeling safe, and emotional effect.
Pediatric nurses need to understand mothers' anxiety, grief, relationships with their children, and coping strategies to provide support.
本研究旨在更好地了解接受儿科姑息治疗的儿童的母亲的体验。
采用定性现象学方法来确定母亲的体验。研究样本包括 15 位母亲。采用个体访谈、介绍性信息表和半结构化访谈表进行数据收集。采用科拉齐的七步方法对数据进行分析。使用 MAXQDA 进行编码和创建主题。
访谈中出现了三个主要主题；家庭经历、社会生活和姑息治疗病房的护理。母亲们表示，家庭关系受到影响，她们感到害怕失去，感到沮丧，所有的治疗和护理责任都落在母亲身上，而且没有社会支持。母亲们说，她们和患有类似疾病的孩子的母亲在同一个地方，因为有单人间，所以她们感到高兴和舒适。此外，母亲们表示，她们非常害怕 COVID-19 病毒感染她们的孩子，从而失去她们的孩子。
母亲们经历了一些问题，如失去亲人的恐惧、抑郁、照顾负担、社会支持、排斥、日常生活、社会关系、安全感和情绪影响。
儿科护士需要了解母亲的焦虑、悲伤、与孩子的关系以及应对策略，以提供支持。
