From the Pediatric Emergency Medicine, Department of Pediatrics, Inselspital, Bern University Hospital, University of Bern, Switzerland.
Institute of Social and Preventive Medicine (ISPM), University of Bern, Bern, Switzerland.
Pediatr Emerg Care. 2022 Oct 1;38(10):511-516. doi: 10.1097/PEC.0000000000002841. Epub 2022 Sep 11.
Standardized, harmonized data sets generated through routine clinical and administrative documentation can greatly accelerate the generation of evidence to improve patient care. The objective of this study was to define a pediatric emergency medicine (PEM) minimal dataset for Switzerland (Swiss PEM minimal dataset) and to contribute a subspecialty module to a national pediatric data harmonization process (SwissPedData).
We completed a modified Delphi survey, inviting experts from all major Swiss pediatric emergency departments (PEDs).
Twelve experts from 10 Swiss PEDs, through 3 Delphi survey rounds and a moderated e-mail discussion, suggested a subspecialty module for PEM to complement the newly developed SwissPedData main common data model (CDM). The PEM subspecialty CDM contains 28 common data elements (CDEs) specific to PEM. Additional CDEs cover PEM-specific admission processes (type of arrival), timestamps (time of death), greater details on investigations and treatments received at the PED, and PEM procedures (eg, procedural sedation). In addition to the 28 CDEs specific to PEM, 43 items from the SwissPedData main CDM were selected to create a Swiss PEM minimal dataset. The final Swiss PEM minimal dataset was similar in scope and content to the registry of the Pediatric Emergency Care Applied Research Network.
A practical minimal dataset for PEM in Switzerland was developed through recognized consensus methodology. The Swiss PEM minimal dataset developed by Swiss PEM experts will facilitate international data sharing for PEM research and quality improvement projects.
通过常规临床和行政记录生成标准化、协调一致的数据集，可以极大地加速产生证据以改善患者护理。本研究的目的是为瑞士定义一个儿科急诊医学（PEM）最小数据集（瑞士 PEM 最小数据集），并为国家儿科数据协调进程（SwissPedData）贡献一个亚专科模块。
我们完成了一项修改后的 Delphi 调查，邀请了所有主要的瑞士儿科急诊部门（PED）的专家参与。
来自 10 家瑞士 PED 的 12 名专家通过 3 轮 Delphi 调查和一次经过协调的电子邮件讨论，建议为 PEM 补充一个亚专科模块，以补充新开发的 SwissPedData 主要通用数据模型（CDM）。PEM 亚专科 CDM 包含 28 个特定于 PEM 的通用数据元素（CDE）。其他 CDE 涵盖了 PEM 特定的入院流程（到达类型）、时间戳（死亡时间）、PED 中接受的调查和治疗的更多详细信息以及 PEM 程序（例如，程序镇静）。除了 28 个特定于 PEM 的 CDE 外，还从 SwissPedData 主要 CDM 中选择了 43 项内容，以创建瑞士 PEM 最小数据集。最终的瑞士 PEM 最小数据集在范围和内容上与儿科急诊护理应用研究网络的注册表相似。
通过公认的共识方法为瑞士的 PEM 开发了实用的最小数据集。瑞士 PEM 专家开发的瑞士 PEM 最小数据集将促进 PEM 研究和质量改进项目的国际数据共享。
