Walsh Chloe, Lydon Sinéad, O'Dowd Emily, O'Connor Paul
National University of Ireland Galway, Galway, Ireland.
Dev Neurorehabil. 2020 Oct;23(7):413-430. doi: 10.1080/17518423.2020.1716868. Epub 2020 Feb 6.
: This review aimed to 1) synthesize extant research on barriers to healthcare access experienced by persons with autism, their caregivers, and health-care providers; and 2) present a taxonomy of barriers to physical healthcare for individuals with autism.: Systematic searches were conducted in five electronic databases. Methodological rigor was assessed using the Quality Assessment Tool for Studies with Diverse Designs. Thematic analysis was used to classify barriers and to develop a taxonomy.: In total, 31 articles were included in the review. The resulting taxonomy consisted of four themes: 1) Challenges Associated with Autism-related Characteristics; 2) Health-care Provider-based Issues; 3) Healthcare System Issues; and 4) Patient-related factors.: Barriers to healthcare access for persons with autism are prevalent and occur at the patient, provider, and system levels. The taxonomy developed may facilitate measurement of barriers within health-care facilities and prompt identification of areas where interventions are warranted to improve care.
1）综合现有关于自闭症患者、其照顾者及医疗服务提供者在获得医疗保健方面所面临障碍的研究；2）提出自闭症患者获得身体医疗保健障碍的分类法。在五个电子数据库中进行了系统检索。使用针对不同设计研究的质量评估工具评估方法的严谨性。采用主题分析法对障碍进行分类并制定分类法。本综述共纳入31篇文章。最终的分类法包含四个主题：1）与自闭症相关特征相关的挑战；2）基于医疗服务提供者的问题；3）医疗保健系统问题；4）患者相关因素。自闭症患者获得医疗保健的障碍普遍存在，且在患者、提供者和系统层面均有发生。所制定的分类法可能有助于衡量医疗机构内的障碍，并促使确定需要进行干预以改善护理的领域。
