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神经发育障碍儿童父母同伴支持体验:定性系统评价。

Experiences of peer support amongst parents of children with neurodevelopmental disorders: A qualitative systematic review.

机构信息

Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Level 2, Clinical Research Centre, Block MD11,10 Medical Drive, 117597, Singapore.

Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Level 2, Clinical Research Centre, Block MD11,10 Medical Drive, 117597, Singapore.

出版信息

J Pediatr Nurs. 2022 Nov-Dec;67:e92-e99. doi: 10.1016/j.pedn.2022.09.004. Epub 2022 Sep 15.

DOI:10.1016/j.pedn.2022.09.004
PMID:36115753
Abstract

PROBLEM

Peer support is a form of social support that can address the complexities of support needs and challenges of parenting children with Neurodevelopmental Disorders (NDDs). However, there is paucity of research on the roles and influences of peer support experienced amongst parents of neurodivergent children. This qualitative systematic review therefore aimed to consolidate and synthesize the experiences of peer support amongst parents caring for neurodivergent children.

ELIGIBILITY CRITERIA

Articles were selected if they reported primary qualitative findings on the experiences of peer-support amongst parents of children diagnosed with at least one NDD as classified by DSM-5.

SAMPLE

Eleven articles were finalised and included in the review.

RESULTS

Four themes emerged: (1) reasons for seeking peer support, (2) different roles of peer support, (3) contributing elements of successful peer support, and (4) barriers against facilitating peer support. The findings of this review revealed that peer support was a valuable social support resource that met the complex support needs of parents. It enabled parents to provide quality care for their children whilst living with quality of life for themselves.

CONCLUSIONS

Peer support could be a valuable resource for parents of neurodivergent children as it could potentially enhance quality of life for parents while providing quality care for their children with complex needs.

IMPLICATIONS

Healthcare providers should integrate peer support as an adjunct resource of social support to help ease caregiver burdens of parents with neurodivergent children.

摘要

问题

同伴支持是一种社会支持形式,可以解决支持需求的复杂性和养育神经发育障碍(NDD)儿童的挑战。然而,关于神经多样性儿童的父母所经历的同伴支持的角色和影响的研究很少。因此,这项定性系统综述旨在综合和综合神经多样性儿童的父母在同伴支持方面的经验。

资格标准

如果文章报告了关于至少被 DSM-5 分类为一种 NDD 的儿童的父母在同伴支持方面的经验的主要定性发现,则选择这些文章。

样本

最终确定并包括了 11 篇文章。

结果

出现了四个主题:(1)寻求同伴支持的原因,(2)同伴支持的不同角色,(3)成功同伴支持的要素,以及(4)促进同伴支持的障碍。这项综述的结果表明,同伴支持是一种有价值的社会支持资源,可以满足父母复杂的支持需求。它使父母能够为孩子提供优质的照顾,同时也能为自己的生活质量提供保障。

结论

同伴支持对于神经多样性儿童的父母来说可能是一种有价值的资源,因为它有可能在为有复杂需求的孩子提供优质护理的同时,提高父母的生活质量。

意义

医疗保健提供者应该将同伴支持作为社会支持的辅助资源来整合,以帮助减轻神经发育障碍儿童的父母的照顾者负担。

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