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全民肾脏健康:弥合肾脏健康教育和素养差距。

Kidney health for all: Bridging the gap in kidney health education and literacy.

机构信息

St. Vincent's Hospital, Department of Medicine, University of Melbourne, Melbourne, Victoria, Australia.

Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine, Orange, CA, USA.

出版信息

Nefrologia (Engl Ed). 2022 Mar-Apr;42(2):113-121. doi: 10.1016/j.nefroe.2022.05.001.

Abstract

The high burden of kidney disease, global disparities in kidney care, and poor outcomes of kidney failure bring a concomitant growing burden to persons affected, their families, and carers, and the community at large. Health literacy is the degree to which persons and organizations have or equitably enable individuals to have the ability to find, understand, and use information and services to make informed health-related decisions and actions for themselves and others. Rather than viewing health literacy as a patient deficit, improving health literacy largely rests with health care providers communicating and educating effectively in codesigned partnership with those with kidney disease. For kidney policy makers, health literacy provides the imperative to shift organizations to a culture that places the person at the center of health care. The growing capability of and access to technology provides new opportunities to enhance education and awareness of kidney disease for all stakeholders. Advances in telecommunication, including social media platforms, can be leveraged to enhance persons' and providers' education; The World Kidney Day declares 2022 as the year of "Kidney Health for All" to promote global teamwork in advancing strategies in bridging the gap in kidney health education and literacy. Kidney organizations should work toward shifting the patient-deficit health literacy narrative to that of being the responsibility of health care providers and health policy makers. By engaging in and supporting kidney health-centered policy making, community health planning, and health literacy approaches for all, the kidney communities strive to prevent kidney diseases and enable living well with kidney disease.

摘要

肾脏疾病负担沉重,全球肾脏保健存在差异,肾衰竭治疗效果不佳,这些都给患者、患者家属和照护者以及整个社区带来了相应的负担。健康素养是指个人和组织拥有或公平地使个人具备获取、理解和使用信息和服务的能力,以便为自己和他人做出明智的与健康相关的决策和行动的程度。提高健康素养不应将其视为患者的缺陷,而主要在于医疗保健提供者与肾脏疾病患者合作设计,进行有效的沟通和教育。对于肾脏疾病政策制定者而言,健康素养要求将组织转变为以患者为中心的医疗保健文化。技术的应用能力和可及性不断提高,为所有利益相关者提供了增强肾脏疾病教育和意识的新机会。远程通讯的进步,包括社交媒体平台,可以用来增强患者和提供者的教育;世界肾脏日宣布 2022 年为“人人享有肾脏健康”年,以促进全球合作,推进肾脏健康教育和素养方面的战略。肾脏疾病组织应努力将以患者为缺陷的健康素养叙事转变为医疗保健提供者和肾脏疾病政策制定者的责任。通过参与和支持以肾脏健康为中心的政策制定、社区卫生规划以及面向所有人的健康素养方法,肾脏社区努力预防肾脏疾病,使人们能够与肾脏疾病一起过上健康的生活。

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