Langham Robyn G, Kalantar-Zadeh Kamyar, Bonner Ann, Balducci Alessandro, Hsiao Li-Li, Kumaraswami Latha A, Laffin Paul, Liakopoulos Vassilios, Saadi Gamal, Tantisattamo Ekamol, Ulasi Ifeoma, Lui Siu-Fai
St. Vincent's Hospital, Department of Medicine, University of Melbourne, Victoria, Australia.
Division of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, CA, USA.
Can J Kidney Health Dis. 2022 Mar 8;9:20543581221085075. doi: 10.1177/20543581221085075. eCollection 2022.
The high burden of kidney disease, global disparities in kidney care, and poor outcomes of kidney failure bring a concomitant growing burden to persons affected, their families, and carers, and the community at large. Health literacy is the degree to which persons and organizations have or equitably enable individuals to have the ability to find, understand, and use information and services to make informed health-related decisions and actions for themselves and others. Rather than viewing health literacy as a patient-deficit, improving health literacy largely rests with health care providers communicating and educating effectively in codesigned partnership with those with kidney disease. For kidney policy makers, health literacy provides the imperative to shift organizations to a culture that places the person at the center of health care. The growing capability of and access to technology provides new opportunities to enhance education and awareness of kidney disease for all stakeholders. Advances in telecommunication, including social media platforms, can be leveraged to enhance persons' and providers' education; The World Kidney Day declares 2022 as the year of "Kidney Health for All" to promote global teamwork in advancing strategies in bridging the gap in kidney health education and literacy. Kidney organizations should work toward shifting the patient-deficit health literacy narrative to that of being the responsibility of health care providers and health policy makers. By engaging in and supporting kidney health-centered policy-making, community health planning, and health literacy approaches for all, the kidney communities strive to prevent kidney diseases and enable living well with kidney disease.
肾脏疾病的高负担、肾脏护理的全球差异以及肾衰竭的不良后果给患者、其家人、护理人员以及整个社区带来了随之而来且不断增加的负担。健康素养是指个人和组织具备或公平地使个人有能力找到、理解和使用信息及服务,以便为自己和他人做出明智的健康相关决策并采取行动的程度。与其将健康素养视为患者的缺陷,提高健康素养很大程度上取决于医疗保健提供者与肾病患者通过共同设计的伙伴关系进行有效沟通和教育。对于肾脏政策制定者而言,健康素养促使组织转向以患者为医疗保健核心的文化。技术能力的不断提升和获取渠道的增加为提高所有利益相关者对肾脏疾病的教育和认识提供了新机会。包括社交媒体平台在内的电信进步可用于加强患者和医疗服务提供者的教育;世界肾脏日宣布2022年为“全民肾脏健康”年,以促进全球团队合作,推进弥合肾脏健康教育和素养差距的战略。肾脏组织应努力将以患者缺陷为导向的健康素养观念转变为医疗保健提供者和健康政策制定者的责任。通过参与并支持以肾脏健康为中心的政策制定、社区健康规划以及面向所有人的健康素养方法,肾脏疾病防治群体努力预防肾脏疾病,并使肾病患者能够过上良好的生活。