Munigala Satish, Gardner Timothy B, O'Reilly Eileen M, Fernández-Del Castillo Carlos, Ko Andrew H, Pleskow Douglas, Vollmer Charles M, Searle Nicholas A, Bakelman David, Holt Jane M, Gelrud Andres
From the Department of Internal Medicine, Saint Louis University Center for Outcomes Research, St. Louis, MO.
Department of Medicine, Section of Gastroenterology, Geisel School of Medicine at Dartmouth, Dartmouth-Hitchcock Medical Center, Lebanon, NH.
Pancreas. 2022 Jul 1;51(6):628-633. doi: 10.1097/MPA.0000000000002087.
Patient education and resources that address barriers to health literacy to improve understanding in pancreatic cancer are limited. We evaluated the impact and outcomes benefits of Animated Pancreas Patient (APP) cancer educational modules (APP website and YouTube).
A retrospective study of APP metrics and utilization data from September 2013 to February 2021 was conducted. We evaluated audience reach and calculated top views by media type (animation/expert video/patient video/slideshow) and top retention videos from the modules.
During the study period, APP had 4,551,079 views worldwide of which 2,757,064 unique visitors or 60% were from the United States. Of these, 54% were patients, 17% were family members or caregivers, 16% were health care providers, and 13% were other. The most popular topic viewed among the animations was "Understanding Clinical Trials" (n = 182,217), and the most common expert video viewed was "What are the different stages of pancreatic cancer?" (n = 15,357).
Pancreatic cancer patient education using APP's visual formats of learning demonstrated a wide reach and had a significant impact on improved understanding among patients, families, and caregivers. Continued efforts should be made to provide patient resources that address health literacy, better quality of life and improved health outcomes in pancreatic cancer.
针对健康素养障碍以提高对胰腺癌理解的患者教育及资源有限。我们评估了胰腺癌患者动画（APP）癌症教育模块（APP网站和YouTube）的影响及结果效益。
对2013年9月至2021年2月期间APP的指标和使用数据进行回顾性研究。我们评估了受众范围，并按媒体类型（动画/专家视频/患者视频/幻灯片）计算了最高浏览量以及各模块中留存率最高的视频。
在研究期间，APP在全球范围内有4551079次浏览量，其中2757064名独立访客（即60%）来自美国。其中，54%为患者，17%为家庭成员或护理人员，16%为医疗保健提供者，13%为其他人员。动画中浏览量最高的主题是“了解临床试验”（n = 182217），专家视频中观看最多的是“胰腺癌有哪些不同阶段？”（n = 15357）。
使用APP的可视化学习形式进行胰腺癌患者教育具有广泛的受众范围，并对提高患者、家庭和护理人员的理解产生了重大影响。应继续努力提供解决健康素养问题、改善胰腺癌患者生活质量和健康结果的患者资源。
