Malmö University, Faculty of Health and Society, Department of Care Science, Jan Waldenströms gata 25, 205 06, Malmö, Sweden; Skåne University Hospital, Department of Pediatrics, Malmö, Sweden.
Malmö University, Faculty of Health and Society, Department of Care Science, Jan Waldenströms gata 25, 205 06, Malmö, Sweden.
Eur J Oncol Nurs. 2022 Dec;61:102205. doi: 10.1016/j.ejon.2022.102205. Epub 2022 Sep 28.
The purpose of the present study was to explore cancer specialist nurses' experiences of supporting family members of persons diagnosed with colorectal cancer.
The study was designed as a qualitative study. Data was collected using individual semi-structured telephone interviews with 21 cancer specialist nurses. The interviews were transcribed and analysed with reflexive thematic analysis.
The analysis generated one overarching theme, In the shadow of the person diagnosed with colorectal cancer, and four themes: striving for confidence, searching for ways to support, seeking individualization, and balancing between needs. Swedish colorectal cancer care is organized with the persons diagnosed with colorectal cancer as the centre of care and lacks both structure and allocated resources for supportive care for family members. Thus, support for family members has to be provided within the existing colorectal cancer care. The support provided focuses mainly on strengthening the family members' ability in the caregiving role and is offered primarily at the time of diagnosis.
There is an apparent need for developing supportive care plans for family members, involving repeated assessments of multidimensional needs, a tailored support, and follow-ups. Accordingly, a re-evaluation of the cancer specialist nurse's role is needed so that key nursing responsibilities are not ranked second to administrative tasks.
本研究旨在探讨癌症专科护士在支持结直肠癌患者家属方面的经验。
本研究设计为定性研究。通过对 21 名癌症专科护士进行个人半结构化电话访谈收集数据。对访谈内容进行转录和分析，采用反思性主题分析。
分析生成了一个总体主题，即“在结直肠癌患者的阴影下”，以及四个主题：努力树立信心、寻找支持的方法、寻求个体化和平衡需求。瑞典的结直肠癌护理以结直肠癌患者为中心进行组织，缺乏支持家庭成员的结构和分配资源。因此，必须在现有的结直肠癌护理中为家庭成员提供支持。提供的支持主要集中在增强家庭成员在护理角色中的能力，主要在诊断时提供。
显然需要为家庭成员制定支持性护理计划，包括反复评估多维需求、量身定制的支持和随访。因此，需要重新评估癌症专科护士的角色，以便将关键护理职责排在行政任务之前。
