Health Policy and Management, DeGroote School of Business, McMaster University, Hamilton, ON L8S 4M1, Canada.
QIMR Berghofer Medical Research Institute, Brisbane, QLD 4006, Australia.
Curr Oncol. 2022 Oct 14;29(10):7705-7717. doi: 10.3390/curroncol29100609.
Perspectives of cancer survivors, caregivers, and social workers as key stakeholders on the clinical management of financial toxicity (FT) are critical to identify opportunities for better FT management. Semi-structured interviews (cancer survivors, caregivers) and a focus group (social workers) were undertaken using purposive sampling at a quaternary public hospital in Australia. People with any cancer diagnosis attending the hospital were eligible. Data were analysed using inductive-deductive content analysis techniques. Twenty-two stakeholders ( = 10 cancer survivors of mixed-cancer types, = 5 caregivers, and = 7 social workers) participated. Key findings included: (i) genuine concern for FT of cancer survivors and caregivers shown through practical support by health care and social workers; (ii) need for clarity of role and services; (iii) importance of timely information flow; and (iv) proactive navigation as a priority. While cancer survivors and caregivers received financial assistance and support from the hospital, the lack of synchronised, shared understanding of roles and services in relation to finance between cancer survivors, caregivers, and health professionals undermined the effectiveness and consistency of these services. A proactive approach to anticipate cancer survivors' and caregivers' needs is recommended. Future research may develop and evaluate initiatives to manage cancer survivors and families FT experiences and outcomes.
癌症幸存者、护理人员和社会工作者作为关键利益相关者,对临床管理财务毒性(FT)的观点至关重要,有助于确定改善 FT 管理的机会。在澳大利亚一家四级公立医院,采用目的抽样法进行了半结构式访谈(癌症幸存者、护理人员)和焦点小组(社会工作者)。有资格参加医院的任何人都有任何癌症诊断。使用归纳演绎内容分析技术对数据进行分析。共有 22 名利益相关者(= 10 名混合癌症类型的癌症幸存者、= 5 名护理人员和= 7 名社会工作者)参与。主要发现包括:(i)医疗保健和社会工作者通过实际支持表现出对癌症幸存者和护理人员财务毒性的真正关注;(ii)需要明确角色和服务;(iii)及时信息流的重要性;(iv)优先主动导航。虽然癌症幸存者和护理人员从医院获得了财务援助和支持,但由于癌症幸存者、护理人员和医疗专业人员之间在财务方面缺乏同步、共享的角色和服务理解,这些服务的有效性和一致性受到了损害。建议采取积极主动的方法来预测癌症幸存者和护理人员的需求。未来的研究可以开发和评估管理癌症幸存者和家庭财务毒性体验和结果的举措。