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阿根廷共识建议:在多发性硬化症成年患者的临床实践中使用远程医疗。

Argentinean consensus recommendations for the use of telemedicine in clinical practice in adult people with multiple sclerosis.

机构信息

Centro Universitario de Esclerosis Múltiple, Hospital Ramos Mejía, Buenos Aires, Argentina.

Servicio de Neurología, Hospital Universitario Sanatorio Guemes, Buenos Aires, Argentina.

出版信息

Neurol Sci. 2023 Feb;44(2):667-676. doi: 10.1007/s10072-022-06471-4. Epub 2022 Nov 2.

Abstract

BACKGROUND

The use of telemedicine has quickly increased during of the COVID-19 pandemic. Given that unmet needs and barriers to multiple sclerosis (MS) care have been reported, telemedicine has become an interesting option to the care of these patients. The objective of these consensus recommendations was to elaborate a guideline for the management of people with MS using telemedicine in order to contribute to an effective and high-quality healthcare.

METHODS

A panel of Argentinean neurologist's experts in neuroimmunological diseases and dedicated to the diagnosis, management,and care of MS patients gathered virtually during 2021 and 2022 to conduct a consensus recommendation on the use of telemedicine in clinical practice in adult people with MS. To reach consensus, the methodology of "formal consensus RAND/UCLA Appropriateness method" was used.

RESULTS

Recommendations were established based on relevant published evidence and expert opinion focusing on definitions, general characteristics and ethical standards, diagnosis of MS, follow-up (evaluation of disability and relapses of MS), identification and treatment of relapses, and finally disease-modifying treatments using telemedicine.

CONCLUSION

The recommendations of this consensus would provide a useful guide for the proper use of telemedicine for the assessment, follow-up, management, and treatment of people with MS. We suggest the use of these guidelines to all the Argentine neurologists committed to the care of people with MS.

摘要

背景

在 COVID-19 大流行期间,远程医疗的使用迅速增加。鉴于多发性硬化症(MS)的护理存在未满足的需求和障碍,远程医疗已成为这些患者护理的一个有趣选择。这些共识建议的目的是制定一项使用远程医疗管理 MS 患者的指南,以促进有效的高质量医疗保健。

方法

一组专门从事神经免疫疾病诊断、管理和 MS 患者护理的阿根廷神经病学家专家于 2021 年和 2022 年期间在线聚集,就成人 MS 患者临床实践中使用远程医疗进行了共识建议。为了达成共识,使用了“正式共识 RAND/UCLA 适宜性方法”的方法。

结果

建议基于相关的已发表证据和专家意见制定,重点关注定义、一般特征和伦理标准、MS 的诊断、随访(评估残疾和 MS 复发)、复发的识别和治疗,以及最后使用远程医疗进行疾病修正治疗。

结论

本共识的建议将为评估、随访、管理和治疗 MS 患者的远程医疗的正确使用提供有用的指南。我们建议所有致力于 MS 患者护理的阿根廷神经病学家使用这些指南。

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