Biswas Jheelam, Faruque Mithila, Banik Palash Chandra, Ahmad Nezamuddin, Mashreky Saidur Rahman
Department of Noncommunicable Diseases Bangladesh University of Health Sciences (BUHS) Dhaka Bangladesh.
Department of Palliative Medicine Bangabandhu Sheikh Mujib Medical University (BSMMU) Dhaka Bangladesh.
Health Sci Rep. 2022 Oct 29;5(6):e908. doi: 10.1002/hsr2.908. eCollection 2022 Nov.
Patient satisfaction is an important quality indicator of health care service. The concept of home-based palliative care has been recently introduced in Bangladesh, but the patients' satisfaction with this care remained unexplored. This study aimed to assess the satisfaction of the cancer patients receiving this care.
This cross-sectional study was conducted among 51 surviving cancer patients above 18 years of age registered under the home-based care service of the Department of Palliative Medicine, Bangabandhu Sheikh Mujib Medical University, Dhaka, Bangladesh. Data were collected by face-to-face interviews using a structured questionnaire based on the FAMCARE P16 questionnaire from February to March 2019. Descriptive analysis was done for the sociodemographic and satisfaction-related indicators. A correlation matrix was done to see the correlation among the satisfaction indicators.
The majority of the patients (88.2%) were satisfied with the service provided by the home care team. Most (76.5%) of the patients were women, and the mean age was 56.25 ± 14.8 years. The median duration of getting home-based care was 4 months. Main satisfaction indicators were-assessment of physical symptoms (70.6%), providing information about pain management (70.6%), the inclusion of the family in decision making (76.5%), coordination of care between the members of the home care team (84.3%) and availability of doctors, nurses and palliative care assistants (74.5%). A high correlation was observed between satisfaction regarding the care of physical symptoms and provision of information ( = 0.814, < 0.001). Also, satisfaction regarding the provision of information and support provided to the family is highly correlated ( = 0.722, < 0.001).
Despite the limitations, the overall satisfaction level of the patients regarding home-based palliative care services in Bangladesh is very high. Home-based palliative can be a solution to provide palliative care to patients who are unable to access institution-based care and improve their quality of life.
患者满意度是医疗服务的一项重要质量指标。居家姑息治疗的概念最近在孟加拉国被引入，但患者对这种治疗的满意度仍未得到探究。本研究旨在评估接受这种治疗的癌症患者的满意度。
这项横断面研究是在孟加拉国达卡班加班杜·谢赫·穆吉布医科大学姑息医学系居家护理服务登记的51名18岁以上的存活癌症患者中进行的。2019年2月至3月，使用基于FAMCARE P16问卷的结构化问卷通过面对面访谈收集数据。对社会人口学和满意度相关指标进行描述性分析。制作相关矩阵以查看满意度指标之间的相关性。
大多数患者（88.2%）对居家护理团队提供的服务感到满意。大多数患者（76.5%）为女性，平均年龄为56.25±14.8岁。接受居家护理的中位时长为4个月。主要的满意度指标包括——身体症状评估（70.6%）、提供疼痛管理信息（70.6%）、让家属参与决策（76.5%）、居家护理团队成员之间的护理协调（84.3%）以及医生、护士和姑息治疗助理的可及性（74.5%）。在身体症状护理满意度和信息提供满意度之间观察到高度相关性（=0.814，<0.001）。此外，在向家属提供信息和支持的满意度之间也存在高度相关性（=0.722，<0.001）。
尽管存在局限性，但孟加拉国患者对居家姑息治疗服务的总体满意度非常高。居家姑息治疗可以为无法获得机构护理的患者提供姑息治疗并改善他们的生活质量。
