Department of Psychology, Health & Technology, Faculty of Behavioural Management and Social Sciences, University of Twente, P.O. Box 217, 7500 AE Enschede, the Netherlands; Department of Clinical Psychology, Faculty of Social and Behavioural Sciences, Utrecht University, P.O. Box 80140, 3508 TC Utrecht, the Netherlands; Department of Clinical Psychology and Experimental Psychopathology, Faculty of Behavioral and Social Sciences, University of Groningen, Grote Kruisstraat 2/1, 9712 TS Groningen, the Netherlands.
Department of Clinical Psychology, Faculty of Social and Behavioural Sciences, Utrecht University, P.O. Box 80140, 3508 TC Utrecht, the Netherlands.
Compr Psychiatry. 2022 Nov;119:152351. doi: 10.1016/j.comppsych.2022.152351. Epub 2022 Oct 25.
Current grief research is dominated by cross-sectional studies assessing prolonged grief disorder (PGD) symptoms retrospectively. Examining grief in daily life, using Experience Sampling Methodology (ESM), may advance the field. Because of the lack of ESM-research on PGD, we evaluated the acceptability and feasibility of assessing PGD symptoms in daily life of bereaved people.
ESM-items assessing PGD symptoms were developed using cognitive interviewing with five ESM/grief experts. Eighty bereaved adults completed these ESM-items five times a day for two weeks. Before and after this ESM-phase, interviews were administered assessing PGD retrospectively (using the Traumatic Grief Inventory-Clinical Administered). t-tests were performed comparing symptom severity of aggregated moment-to-moment recall (using ESM-items) with retrospective recall (based on interviews) of PGD symptoms. Acceptability of participating in ESM-research (assessed with the Reactions to Research Participation Questionnaire) was examined using descriptive statistics. Feasibility was evaluated by reporting compliance and retention rates.
Minor changes were made to the ESM-items based on expert interviews. Average levels of aggregated moment-to-moment recall of the symptoms "yearning" (d = -1.04), "preoccupation with the deceased" (d = -0.91), "marked sense of disbelief" (d = -0.43), and "intense loneliness" (d = -0.28) were lower compared with retrospective recalling these symptoms. On average, bereaved people were neutral about personal benefits gained through participation in this EMS-study. They indicated that participation did not raise emotional reactions. Compliance and retention rates were 60% and 65%, respectively.
Our findings indicate that whereas compliance and retention is challenging, using ESM to study PGD symptoms in daily life might be useful. Nevertheless, more research is needed.
目前的悲伤研究主要以横断面研究为主,回顾性评估持续性悲伤障碍(PGD)的症状。使用经验采样法(ESM)来研究日常生活中的悲伤可能会推动该领域的发展。由于缺乏关于 PGD 的 ESM 研究,我们评估了在丧亲者的日常生活中评估 PGD 症状的可接受性和可行性。
使用认知访谈法,与五名 ESM/悲伤专家一起开发了评估 PGD 症状的 ESM 项目。八十名丧亲的成年人在两周内每天五次完成这些 ESM 项目。在这个 ESM 阶段之前和之后,通过使用创伤性悲伤清单-临床管理版(Traumatic Grief Inventory-Clinical Administered)进行回顾性访谈,评估 PGD 的症状。使用 t 检验比较了聚合瞬间回忆(使用 ESM 项目)与 PGD 症状的回顾性回忆(基于访谈)之间的症状严重程度。使用研究参与反应问卷(Reactions to Research Participation Questionnaire)来评估对参与 ESM 研究的可接受性,使用描述性统计进行评估。通过报告遵守率和保留率来评估可行性。
根据专家访谈,对 ESM 项目进行了一些小的修改。“渴望”(d=-1.04)、“对死者的专注”(d=-0.91)、“明显的难以置信感”(d=-0.43)和“强烈的孤独感”(d=-0.28)等症状的聚合瞬间回忆的平均水平低于这些症状的回顾性回忆。平均而言,丧亲者对通过参与这项 EMS 研究获得的个人收益持中立态度。他们表示,参与不会引起情绪反应。遵守率和保留率分别为 60%和 65%。
我们的研究结果表明,虽然遵守率和保留率具有挑战性,但使用 ESM 研究日常生活中的 PGD 症状可能是有用的。然而,还需要更多的研究。