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使创伤生态瞬时评估研究做到公平:设计考量与数据程序综述

Making trauma ecological momentary assessment studies FAIR: review of design considerations and data procedures.

作者信息

Hruska Bryce, Piccirillo Marilyn L, Lenferink Lonneke I M, Pacella-LaBarbara Maria L, Contractor Ateka A, Price Matthew, Greene Talya

机构信息

Department of Public Health, Syracuse University, Syracuse, NY, USA.

Department of Psychiatry, Rutgers Robert Wood Johnson Medical School, Piscataway, NJ, USA.

出版信息

Eur J Psychotraumatol. 2025 Dec;16(1):2477423. doi: 10.1080/20008066.2025.2477423. Epub 2025 Mar 21.

DOI:10.1080/20008066.2025.2477423
PMID:40116183
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11934184/
Abstract

Ecological momentary assessment (EMA) involves collecting data from people in their everyday lives one or more times per day over the course of days, weeks, or months. EMA has been used in the traumatic stress field to better understand how trauma-relevant symptoms, experiences, and behaviours occur under naturalistic conditions and in relation to one another. The FAIR principles specify that data should be Findable, Accessible, Interoperable, and Reusable to maximise the knowledge gained from individual research studies. However, it is unclear how EMA design decisions and data procedures might affect the implementation of these principles. We articulate key design considerations and data procedures when performing trauma EMA research and outline some challenges and recommendations for implementing the FAIR data principles in trauma EMA research. Using examples from existing trauma EMA studies, we discuss the decisions made when preparing a trauma EMA study; data processing and analytic procedures performed following data collection; and challenges that exist for their implementation, as well as practices that trauma EMA researchers can incorporate into their research to promote FAIR data. Implementing the FAIR data principles in trauma EMA research is critical to advancing scientific knowledge. Researchers should deposit their data in reputable repositories and include documentation detailing design decisions and the steps taken to clean and prepare data. Many challenges remain for the implementation of these practices including balancing privacy concerns and efforts to make trauma EMA data readily shareable.

摘要

生态瞬时评估(EMA)涉及在数天、数周或数月的时间里,每天从人们的日常生活中收集一次或多次数据。EMA已被应用于创伤应激领域,以更好地了解与创伤相关的症状、经历和行为是如何在自然条件下以及它们之间的关系中发生的。FAIR原则规定,数据应具备可查找、可访问、可互操作和可重用的特性,以最大限度地从个体研究中获取知识。然而,尚不清楚EMA的设计决策和数据程序可能如何影响这些原则的实施。我们阐述了进行创伤EMA研究时的关键设计考量和数据程序,并概述了在创伤EMA研究中实施FAIR数据原则的一些挑战和建议。通过现有创伤EMA研究的实例,我们讨论了在准备创伤EMA研究时所做的决策;数据收集后进行的数据处理和分析程序;以及实施过程中存在的挑战,还有创伤EMA研究人员可以纳入其研究以促进FAIR数据的做法。在创伤EMA研究中实施FAIR数据原则对于推进科学知识至关重要。研究人员应将其数据存入知名的存储库,并包括详细说明设计决策以及清理和准备数据所采取步骤的文档。实施这些做法仍存在许多挑战,包括平衡隐私问题和使创伤EMA数据易于共享的努力。

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Transl Psychiatry. 2024 Feb 2;14(1):74. doi: 10.1038/s41398-024-02795-1.
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