Smith Jennifer D, Nidey Nichole, Chödrön Gail S, Czyzia Jackie, Donahue Michelle L, Ford Kristie, James Cristina, Klimova Oksana, Macias Michelle M, Rabidoux Paula, Whitaker Toni M, Brosco Jeffrey P
University of Cincinnati College of Medicine, Department of Pediatrics, Cincinnati, Ohio.
Leadership Education in Neurodevelopmental and related Disabilities (LEND) Program, Division of Developmental and Behavioral Pediatrics.
Pediatrics. 2022 Dec 1;150(6). doi: 10.1542/peds.2022-058236.
Children with developmental disabilities (DD), such as autism spectrum disorder (ASD), have complex health and developmental needs that require multiple service systems and interactions with various professionals across disciplines. The growing number of children and youth identified with ASD or DD, including anxiety and depression, has increased demand for services and need for highly qualified pediatric providers. Federally funded Leadership Education in Neurodevelopmental and related Disabilities (LEND) programs across the United States address today's health care shortages by providing comprehensive, interdisciplinary training to providers from multiple pediatric disciplines who screen, diagnose, and treat those with ASD and DD. Each LEND program develops training methods independently, including quality improvement efforts. In 2014, LEND programs began designing and validating common measures to evaluate LEND training. The LEND Program Quality Improvement (LPQI) Network was established in 2016. Participating LEND programs in the LPQI Network administer validated trainee self-report and faculty-observation measures that address skills in key competency domains of Interdisciplinary or Interprofessional Team Building, Family-Professional Partnerships, and Policy. This study reports data from faculty and trainees from 22 LEND programs that participated in the LPQI Network across the 5-year data collection period. The main outcome of this study was the change in trainee knowledge, skills, and attitudes scores in key competency domains across programs. Overall, trainees made significant knowledge, skills, and attitude gains based on both self-report and faculty observation scores for all 3 competency domains. Data demonstrate the value of LEND programs and feasibility of a national quality improvement approach to evaluate interdisciplinary training and systems-level improvement.
患有发育障碍(DD)的儿童,如自闭症谱系障碍(ASD),有着复杂的健康和发育需求,这需要多个服务系统以及与各学科的不同专业人员进行互动。被确诊患有ASD或DD(包括焦虑和抑郁)的儿童和青少年数量不断增加,这使得对服务的需求以及对高素质儿科医疗服务提供者的需求也随之增长。美国各地由联邦政府资助的神经发育及相关残疾领导力教育(LEND)项目,通过为来自多个儿科领域、负责筛查、诊断和治疗ASD及DD患者的医疗服务提供者提供全面的跨学科培训,来应对当今医疗保健人员短缺的问题。每个LEND项目都独立开发培训方法,包括质量改进措施。2014年,LEND项目开始设计并验证用于评估LEND培训的通用指标。LEND项目质量改进(LPQI)网络于2016年成立。参与LPQI网络的LEND项目实施经过验证的学员自我报告和教师观察指标,这些指标涉及跨学科或跨专业团队建设、家庭 - 专业伙伴关系以及政策等关键能力领域的技能。本研究报告了来自22个参与LPQI网络的LEND项目的教师和学员在5年数据收集期内的数据。本研究的主要结果是各项目中学员在关键能力领域的知识、技能和态度得分的变化。总体而言,基于所有3个能力领域的自我报告和教师观察得分,学员在知识、技能和态度方面都取得了显著进步。数据证明了LEND项目的价值以及采用国家质量改进方法评估跨学科培训和系统层面改进的可行性。