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The Common Rule, Updated.《通用规则》更新版
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Co-ordinated ocular development from human iPS cells and recovery of corneal function.人类诱导多能干细胞协调的眼部发育和角膜功能的恢复。
Nature. 2016 Mar 17;531(7594):376-80. doi: 10.1038/nature17000. Epub 2016 Mar 9.
3
An Interactive Multimedia Approach to Improving Informed Consent for Induced Pluripotent Stem Cell Research.一种用于改善诱导多能干细胞研究知情同意的交互式多媒体方法。
Cell Stem Cell. 2016 Mar 3;18(3):307-8. doi: 10.1016/j.stem.2016.02.006.
4
World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.《世界医学协会赫尔辛基宣言：涉及人类受试者的医学研究伦理原则》
JAMA. 2013 Nov 27;310(20):2191-4. doi: 10.1001/jama.2013.281053.
5
Convention on the Rights of Persons with Disabilities.《残疾人权利公约》
Eur J Health Law. 2007 Nov;14(3):281-98. doi: 10.1515/9783110208856.203.
6
Consent of the blind and visually impaired: a time to change practice.盲人和视力受损者的同意：是时候改变做法了。
Br J Ophthalmol. 2004 Feb;88(2):310-1. doi: 10.1136/bjo.2003.025239.

学习倾听：为视障患者提供知情同意的补充方法。

Learning to listen: A complementary approach to informed consent for patients with visual impairments.

机构信息

Uehiro Research Division for iPS Cell Ethics, Center for iPS Cell Research and Application, Kyoto University, Kyoto 606-8507, Japan; Department of Computational Biology and Medical Sciences, Graduate School of Frontier Sciences, The University of Tokyo, Chiba 277-8561, Japan.

Department of Ophthalmology, Osaka University Graduate School of Medicine, Osaka 565-0871, Japan.

出版信息

Stem Cell Reports. 2022 Dec 13;17(12):2582-2584. doi: 10.1016/j.stemcr.2022.10.008. Epub 2022 Nov 10.

DOI:10.1016/j.stemcr.2022.10.008
PMID:36368328
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9768572/
Abstract

This forum describes an exploratory approach for assisting individuals with visual impairment during the informed consent (IC) process to participate in a cutting-edge trial. Our approach has been developed to focus on potential participants' preparedness to give IC, along with the creation of supporting audio material.

摘要

本论坛描述了一种探索性方法，旨在协助视力障碍个体在知情同意（IC）过程中参与一项前沿试验。我们的方法旨在关注潜在参与者准备给予 IC 的程度，以及创建支持音频材料。