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Unsolved problems in CDH follow-up.先天性膈疝随访中的未解决问题。
Front Pediatr. 2022 Oct 26;10:977354. doi: 10.3389/fped.2022.977354. eCollection 2022.
2
The long-term follow-up of patients with a congenital diaphragmatic hernia: a broad spectrum of morbidity.先天性膈疝患者的长期随访：广泛的发病率
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J Surg Res. 2021 Nov;267:243-250. doi: 10.1016/j.jss.2021.05.022. Epub 2021 Jun 23.
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[The long-term follow-up of patients with a congenital diaphragmatic hernia: review of the literature].[先天性膈疝患者的长期随访：文献综述]
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Defining outcomes following congenital diaphragmatic hernia using standardised clinical assessment and management plan (SCAMP) methodology within the CDH EURO consortium.使用先天性膈疝 EURO 联盟内的标准化临床评估和管理计划 (SCAMP) 方法定义先天性膈疝的结局。
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2
Top 10 research priorities for congenital diaphragmatic hernia in Australia: James Lind Alliance Priority Setting Partnership.澳大利亚先天性膈疝的十大研究重点：詹姆斯·林德联盟优先事项设定合作项目
Arch Dis Child Fetal Neonatal Ed. 2024 Dec 20;110(1):23-29. doi: 10.1136/archdischild-2024-327108.

本文引用的文献

1
Fetal Surgery for Severe Left Diaphragmatic Hernia.严重左侧膈疝的胎儿手术
N Engl J Med. 2021 Nov 25;385(22):2111-2112. doi: 10.1056/NEJMc2115673.
2
Respiratory syncytial virus bronchiolitis in congenital diaphragmatic hernia: A systematic review of prevalence rates and palivizumab prophylaxis.先天性膈疝患儿的呼吸道合胞病毒毛细支气管炎：患病率及帕利珠单抗预防率的系统评价。
Pediatr Pulmonol. 2022 Jan;57(1):239-244. doi: 10.1002/ppul.25717. Epub 2021 Oct 12.
3
Randomized Trial of Fetal Surgery for Severe Left Diaphragmatic Hernia.随机对照试验：胎儿手术治疗严重左侧膈疝
N Engl J Med. 2021 Jul 8;385(2):107-118. doi: 10.1056/NEJMoa2027030. Epub 2021 Jun 8.
4
Randomized Trial of Fetal Surgery for Moderate Left Diaphragmatic Hernia.随机对照试验胎儿手术治疗中度左侧膈疝。
N Engl J Med. 2021 Jul 8;385(2):119-129. doi: 10.1056/NEJMoa2026983. Epub 2021 Jun 8.
5
Thoracoscopic repair of congenital diaphragmatic hernia in neonates: findings of a multicenter study in Japan.新生儿先天性膈疝的胸腔镜修复术：日本一项多中心研究的结果
Surg Today. 2021 Oct;51(10):1694-1702. doi: 10.1007/s00595-021-02278-6. Epub 2021 Apr 20.
6
Early, Postnatal Pulmonary Hypertension Severity Predicts Inpatient Outcomes in Congenital Diaphragmatic Hernia.先天性膈疝患者早发性、产后肺动脉高压严重程度可预测住院结局。
Neonatology. 2021;118(2):147-154. doi: 10.1159/000512966. Epub 2021 Apr 13.
7
Identifying risk factors for enteral access procedures in neonates with congenital diaphragmatic hernia: A novel risk-assessment score.识别先天性膈疝新生儿肠内通路程序的风险因素：一种新的风险评估评分。
J Pediatr Surg. 2021 Jun;56(6):1130-1134. doi: 10.1016/j.jpedsurg.2021.02.029. Epub 2021 Feb 24.
8
Neurodevelopmental outcomes in children with isolated congenital diaphragmatic hernia: A systematic review and meta-analysis.孤立性先天性膈疝患儿的神经发育结局：一项系统评价和荟萃分析。
Prenat Diagn. 2022 Mar;42(3):318-329. doi: 10.1002/pd.5916. Epub 2021 Mar 21.
9
One-year outcomes of congenital diaphragmatic hernia repair: Factors associated with recurrence and complications.先天性膈疝修复术的 1 年结果：与复发和并发症相关的因素。
J Pediatr Surg. 2021 Sep;56(9):1542-1546. doi: 10.1016/j.jpedsurg.2020.09.018. Epub 2020 Oct 1.
10
The prevalence of hearing loss in children with congenital diaphragmatic hernia: A longitudinal population-based study.先天性膈疝患儿听力损失的患病率：一项基于人群的纵向研究。
J Pediatr Surg. 2021 Feb;56(2):226-229. doi: 10.1016/j.jpedsurg.2020.08.008. Epub 2020 Aug 15.

先天性膈疝随访中的未解决问题。

Unsolved problems in CDH follow-up.

作者信息

Valfré Laura, Conforti Andrea, Morini Francesco, Patel Neil, Bevilacqua Francesca, Cianci Maria Chiara, Bagolan Pietro, Braguglia Annabella

机构信息

Neonatal Surgery Unit, Medical and Surgical Department of Fetus-Newborn-Infant, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.

Neonatal Surgery Unit, Meyer Children Hospital, Florence, Italy.

出版信息

Front Pediatr. 2022 Oct 26;10:977354. doi: 10.3389/fped.2022.977354. eCollection 2022.

DOI:10.3389/fped.2022.977354
PMID:36389367
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9645578/
Abstract

In patients affected by CDH, survival beyond the neonatal period continues to increase thanks to technological and pharmacological improvements. Conversely, patients, families and caregivers are more and more frequently facing "new" complex late comorbidities, including chronic pulmonary and cardiac dysfunctions, neurodevelopmental challenges, and specific nutritional requirements, that often require ongoing long-term medical or surgical care. Therefore, late morbidity is now a key focus in clinical care of CDH. The aims of this paper are to stress some of the most important "unsolved problems" for CDH patients at long-term follow-up.

摘要

在患有先天性膈疝（CDH）的患者中，由于技术和药理学的进步，新生儿期后的生存率持续提高。相反，患者、家庭和护理人员越来越频繁地面临“新的”复杂晚期合并症，包括慢性肺和心脏功能障碍、神经发育挑战以及特殊的营养需求，这些往往需要持续的长期医疗或手术护理。因此，晚期发病率现在是CDH临床护理中的一个关键重点。本文的目的是强调在长期随访中CDH患者一些最重要的“未解决问题”。