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家长视角:感觉敏感如何影响自闭症谱系障碍青少年和青年向成年期的过渡

Parental Perspectives: How Sensory Sensitivities Impact the Transition to Adulthood in Adolescents and Young Adults with Autism Spectrum Disorder.

作者信息

Hantman Rachel M, Johnston Emily B, Tager-Flusberg Helen

机构信息

Department of Psychological and Brain Sciences, Boston University, Boston, MA, USA.

Department of Psychology, University of South Carolina, Columbia, SC, USA.

出版信息

J Autism Dev Disord. 2024 Feb;54(2):544-562. doi: 10.1007/s10803-022-05815-5. Epub 2022 Nov 19.

Abstract

Sensory sensitivities are common in autism spectrum disorder (ASD) and impact daily life, but research has largely focused on children, neglecting older individuals. Likewise, while there is research regarding parental concerns for their autistic children's transition to adulthood, little is known about the role of sensory sensitivities. To address this gap, 66 parents of autistic adolescents and young adults were interviewed and their responses were qualitatively analyzed. All parents believed their children's sensory sensitivities impacted their transition to adulthood, primary developmentally/psychologically, interpersonally/socially, and managerially. These beliefs did not significantly differ by child characteristics, such as age and ASD severity. Parent perceptions were modality and context specific. Given these findings, transition planning should consider individual's specific sensory sensitivities to optimize independence.

摘要

感觉敏感在自闭症谱系障碍(ASD)中很常见,并且会影响日常生活,但研究主要集中在儿童身上,而忽视了年龄较大的个体。同样,虽然有关于父母对其自闭症子女向成年过渡的担忧的研究,但对于感觉敏感的作用却知之甚少。为了填补这一空白,研究人员采访了66位自闭症青少年和青年的父母,并对他们的回答进行了定性分析。所有父母都认为,他们孩子的感觉敏感在发育/心理、人际/社交和管理方面对其向成年的过渡产生了影响。这些看法在孩子的特征(如年龄和ASD严重程度)方面没有显著差异。父母的认知是特定于感觉模态和情境的。鉴于这些发现,过渡计划应考虑个体的特定感觉敏感,以优化其独立性。

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In Our Own Words: The Complex Sensory Experiences of Autistic Adults.《自闭症成人的复杂感官体验:来自他们自己的声音》
J Autism Dev Disord. 2022 Jul;52(7):3061-3075. doi: 10.1007/s10803-021-05186-3. Epub 2021 Jul 13.

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