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乌干达西部接受艾滋病毒/艾滋病护理者所遭受的耻辱和歧视:专家服务对象的经历与作用

Stigma and Discrimination of HIV/AIDs Recipients of Care in Western Uganda: Experiences and Roles of Expert Clients.

作者信息

Atwijukiire Humphrey, Jemba Nalubega Hajarah, Byaruhanga Vicensio, Atwiine Prossy, Muhame Kennedy, Mpumwire Peninah, Bukombi Muhindi Eliphaz, Niyonzima Vallence

机构信息

Nursing Department, Bishop Stuart University, Mbarara City, Uganda.

Nursing Department, Mbarara University of Science and Technology, Mbarara City, Uganda.

出版信息

HIV AIDS (Auckl). 2022 Nov 14;14:517-527. doi: 10.2147/HIV.S387599. eCollection 2022.

Abstract

PURPOSE

Stigma and discrimination (SAD) remains a major challenge facing HIV/AIDs management in most countries of sub-Saharan Africa. Expert clients can potentially play a role in the fight against SAD. Our study explored the experiences and the role of expert clients in reducing SAD among people living with HIV/AIDs enrolled on care in health facilities in Western Uganda.

PARTICIPANTS AND MATERIALS

We conducted a phenomenological qualitative study among (12) twelve purposively selected expert clients at four health facilities in Sheema district, Western Uganda. In-depth interviews were conducted using an interview guide. Data were transcribed verbatim, translated to English, manually coded and analysed manually by thematic content.

RESULTS

Four themes emerged describing the experiences of expert clients in reducing HIV/AIDs SAD; 1) Feeling of inner satisfaction, 2) Challenging work environment, 3) Acquisition of skills and 4) Disclosure dilemma. The roles of expert clients in reducing HIV-related SAD included 1) Facilitating status disclosure, 2) Identifying and helping clients with stigma/discrimination, 3) Linking patients to the health care system and 4) Promotion of positive living.

CONCLUSION

Expert clients had numerous experiences and play a key role in the fight against SAD. Expert clients should be included as one of the stakeholders in the efforts to reduce or eradicate SAD in the management of HIV/AIDs.

摘要

目的

在撒哈拉以南非洲的大多数国家,耻辱感和歧视仍然是艾滋病毒/艾滋病管理面临的主要挑战。专家患者有可能在抗击耻辱感和歧视方面发挥作用。我们的研究探讨了专家患者在减少乌干达西部卫生设施中接受护理的艾滋病毒/艾滋病感染者的耻辱感和歧视方面的经历及作用。

参与者和材料

我们在乌干达西部希马区的四个卫生设施对12名经过有目的挑选的专家患者进行了一项现象学定性研究。使用访谈指南进行了深入访谈。数据逐字转录,翻译成英文,手动编码并通过主题内容进行手动分析。

结果

出现了四个主题,描述了专家患者在减少艾滋病毒/艾滋病耻辱感和歧视方面的经历;1)内心满足感,2)具有挑战性的工作环境,3)技能获取,4)披露困境。专家患者在减少与艾滋病毒相关的耻辱感和歧视方面的作用包括1)促进身份披露,2)识别并帮助遭受耻辱感/歧视的患者,3)将患者与医疗保健系统联系起来,4)促进积极生活。

结论

专家患者有诸多经历,在抗击耻辱感和歧视方面发挥关键作用。在减少或消除艾滋病毒/艾滋病管理中的耻辱感和歧视的努力中,应将专家患者纳入利益相关者之列。

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