Madan Robert, Natadiria Marsha, Berall Anna, Santiago Anna Theresa, Schwartz Kenneth
Division of Geriatric Psychiatry, Department of Psychiatry, University of Toronto, Toronto, ON.
Baycrest Health Sciences, Toronto, ON.
Can Geriatr J. 2022 Dec 1;25(4):368-374. doi: 10.5770/cgj.25.603. eCollection 2022 Dec.
Family caregivers can experience significant stress related to behaviour changes in persons with dementia (PWD). Approaches to support caregivers with stress management when responding to changes in behaviours are needed. The Baycrest Quick-Response Caregiver Tool (BQRCT) was developed to provide caregivers with an online tool that can be used in real time to recognize and manage their emotions when managing neuropsychiatric symptoms of dementia.
A mixed-methods approach was used to evaluate the feasibility of this new tool. Family caregivers of persons with dementia received education about managing neuropsychiatric symptoms of dementia through the online tool. Caregiver demographic information and feedback about the tool was obtained through telephone and online surveys. Health-care providers accessed the tool and also provided feedback.
The 21 caregivers who completed the study found the tool helpful and reported high feasibility that included being able to access, complete, and implement the strategies presented in the tool. The 18 health-care providers found the tool useful and most would recommend it to peers and clients. Participants also provided specific suggestions for improvement, such as including more examples of complex behaviours.
This tool adds to and complements existing strategies for managing neuropsychiatric symptoms of dementia. Its accessibility through the online platform is especially useful for caregivers who are unable to seek help in person, and for health-care providers and caregivers seeking additional resources.
家庭照护者在应对痴呆症患者(PWD)的行为变化时可能会经历巨大压力。需要采取方法来支持照护者在应对行为变化时进行压力管理。贝克里斯特快速反应照护者工具(BQRCT)的开发目的是为照护者提供一种在线工具,可在管理痴呆症神经精神症状时实时用于识别和管理他们的情绪。
采用混合方法评估这一新工具的可行性。痴呆症患者的家庭照护者通过在线工具接受了关于管理痴呆症神经精神症状的教育。通过电话和在线调查获取了照护者的人口统计学信息和关于该工具的反馈。医疗保健提供者访问了该工具并提供了反馈。
完成研究的21名照护者认为该工具很有帮助,并报告了高可行性,包括能够访问、完成并实施该工具中提出的策略。18名医疗保健提供者认为该工具有用,大多数人会向同行和客户推荐。参与者还提供了具体的改进建议,例如增加更多复杂行为的示例。
该工具补充并完善了现有的痴呆症神经精神症状管理策略。通过在线平台可获取该工具,这对无法亲自寻求帮助的照护者以及寻求更多资源的医疗保健提供者和照护者尤其有用。