Herwest Sarah, Kuhlmann Stella Linnea, Willert Anna-Christin, Ploner Christoph Johannes, Kowski Alexander Bernhard
Department of Neurology, Charité-Universitätsmedizin Berlin, 13353 Berlin, Germany.
Brain Sci. 2022 Dec 10;12(12):1697. doi: 10.3390/brainsci12121697.
Palliative care adds significant burdens to healthcare workers. In neuropalliative care (NPC), additional challenges include patient symptom burdens, such as impairments in mobility, cognition, and communication. After one year of operating the first NPC ward in Germany, we assessed burdens, resources, and the number of deaths perceived as stressful. NPC physicians and nursing staff were compared with the team of other neurological wards, including a stroke unit. The assessment took place between March 2022 and May 2022. All 64 team members were contacted; the responder rate was 81%. The perceived burden was high but did not differ between groups. There were no differences between the NPC- and the neurological wards in the number of deaths perceived as stressful. However, rather than the number of deaths, the circumstances of dying influence the perceived distress. The resources mentioned were similar between groups, with the team and private life being most important. Communication difficulties were frequently cited as stressful, whereas successful communication was identified as a resource.
姑息治疗给医护人员增加了巨大负担。在神经姑息治疗（NPC）中，额外的挑战包括患者的症状负担，如行动、认知和沟通障碍。在德国首个NPC病房运营一年后，我们评估了负担、资源以及被视为有压力的死亡数量。将NPC医生和护理人员与其他神经科病房的团队进行比较，包括一个中风单元。评估于2022年3月至2022年5月进行。联系了所有64名团队成员；回复率为81%。感知到的负担很高，但两组之间没有差异。在被视为有压力的死亡数量方面，NPC病房和神经科病房之间没有差异。然而，影响感知到的痛苦的是死亡的情况而非死亡数量。两组提到的资源相似，团队和私人生活最为重要。沟通困难经常被认为是有压力的，而成功的沟通则被视为一种资源。
