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脆弱性、残疾与能动性:探索包容性决策及参与响应型国家治理的架构

Vulnerability, Disability, and Agency: Exploring Structures for Inclusive Decision-Making and Participation in a Responsive State.

作者信息

Mustaniemi-Laakso Maija, Katsui Hisayo, Heikkilä Mikaela

机构信息

Institute for Human Rights, Åbo Akademi University, Turku, Finland.

Faculty of Social Sciences, University of Helsinki, Helsinki, Finland.

出版信息

Int J Semiot Law. 2022 Dec 21:1-29. doi: 10.1007/s11196-022-09946-x.

Abstract

By unpacking some of the dichotomies inherent in the concepts of vulnerability and disability, the article problematises some of the current legal approaches to disability in Finland. It argues that where used to single out population groups or individuals due to their embodied characteristics, the vulnerability paradigm can be seen to create binaries both among the persons with disabilities, and between the "vulnerable" persons with disabilities and the perception of a rational, self-standing and autonomous human being. To mitigate such binaries, the article explores an agency-centred discourse of vulnerability, one that recognises the co-existence of agency and vulnerability and sees agency as dynamic and responsive to the societal support structures that surround all of us. One of the central arguments of the article is that generalised approaches do, however, not suffice to make agency a reality for all persons with disabilities. Given the extensive diversity of intra-group variations between persons with disabilities, individualised solutions are needed for agency to be possible for all. To overcome objectification and de-agencification - and to enhance agency - this diversity of situations, needs and contexts of lived-in realities of individuals also needs to be expressly reflected in the legal language in addressing disability.

摘要

通过剖析脆弱性和残疾概念中固有的一些二分法,本文对芬兰当前一些关于残疾的法律方法提出了质疑。文章认为,当脆弱性范式被用于因身体特征而挑选出特定人群或个体时,它会在残疾人之间,以及在“脆弱的”残疾人与理性、独立和自主的人的认知之间制造二元对立。为了缓解这种二元对立,本文探讨了一种以能动性为中心的脆弱性话语,这种话语承认能动性与脆弱性的共存,并将能动性视为动态的,且对我们所有人周围的社会支持结构做出反应。然而,本文的一个核心观点是,一般化的方法不足以让所有残疾人都能实现能动性。鉴于残疾人内部群体差异的广泛多样性,需要个性化的解决方案才能使所有人都有可能实现能动性。为了克服客观化和去能动性化,并增强能动性,在处理残疾问题的法律语言中,也需要明确反映出个体生活现实中这种情况、需求和背景的多样性。

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