Summer Foundation, Melbourne, Victoria, Australia
Living with Disability Research Centre, La Trobe University, Melbourne, Victoria, Australia.
BMJ Open. 2022 Dec 8;12(12):e064921. doi: 10.1136/bmjopen-2022-064921.
Co-designing healthcare research and health services is becoming increasingly prominent. Co-design invites people with disability to leverage their lived experience knowledge to improve service provision, as well as ensuring meaningful and relevant research. Given the emerging nature of the use of co-design with adults with neurological disability, well-defined guidelines on best practice are yet to be developed. The aim of this scoping review is to synthesise available peer-reviewed literature which investigates the use of co-design in research and/or service development with adults who have an acquired neurological disability and live within the community. The findings of this review will help to guide future co-design practice, ensuring people with acquired neurological disability are best supported and engaged in the process.
This review will follow methodology proposed by Arksey and O'Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analysis: Extension for Scoping Reviews. Systematic electronic database searches will be conducted between the years 2000 and 2022, via MEDLINE, CINAHL, PsycINFO, Scopus and Embase. Article screening and selection will follow the five-stage framework of Arksey and O'Malley, using Covidence software to support review of each retrieved article by two independent reviewers. Final selected qualitative and/or mixed-methods studies that meet the inclusion criteria will be charted, data collated, summarised and reported. Thematic synthesis will be applied to the qualitative data extracted from these studies.
Ethics approval will not be required to conduct this scoping review. It is the authors' intention for the findings of this scoping review to be made available to relevant stakeholders through open-access peer-reviewed publication and disseminated with other healthcare and research networks via translation pieces, including the development of short video summaries and practice resources.
共同设计医疗保健研究和卫生服务正变得越来越重要。共同设计邀请残疾人士利用其生活经验知识来改善服务提供，同时确保研究具有意义和相关性。鉴于共同设计在患有神经发育障碍的成年人中使用的新兴性质，尚未制定明确的最佳实践指南。本综述的目的是综合现有同行评议文献，这些文献调查了共同设计在具有社区居住的获得性神经残疾成年人的研究和/或服务开发中的使用。本综述的结果将有助于指导未来的共同设计实践，确保获得性神经残疾人士得到最佳支持和参与。
本综述将遵循 Arksey 和 O'Malley 提出的方法和系统评价和荟萃分析扩展的首选报告项目：范围综述。将通过 MEDLINE、CINAHL、PsycINFO、Scopus 和 Embase 在 2000 年至 2022 年间进行系统的电子数据库搜索。文章筛选和选择将遵循 Arksey 和 O'Malley 的五阶段框架，使用 Covidence 软件支持两名独立审查员对每个检索到的文章进行审查。最终选定符合纳入标准的定性和/或混合方法研究将进行图表制作、数据整理、汇总和报告。将对从这些研究中提取的定性数据应用主题综合分析。
进行这项范围综述不需要伦理批准。作者的意图是通过开放获取同行评议的出版物向相关利益攸关方提供这项范围综述的结果，并通过翻译作品（包括制作短视频摘要和实践资源）与其他医疗保健和研究网络传播。
