School of Health and Welfare, Halmstad University, SE-30118 Halmstad, Sweden.
Department of Social Work, Faculty of Health and Society, Malmö University, SE-20506 Malmö, Sweden.
Int J Environ Res Public Health. 2022 Dec 30;20(1):643. doi: 10.3390/ijerph20010643.
Age-related macular degeneration (AMD) is the most common cause of incurable visual impairment and impacts daily life. These impacts include loss of social activities, decreased functional independence, and reduced physical activity. This protocol aims to describe a prospective, mixed-methodology for studying a population with AMD before, during, and after an empowerment-based physical activity intervention (EPI). A study framework was also developed for EPI. The intervention will include 20 older individuals (age 65+ years) with AMD recruited in Sweden. The intervention period is six months and comprises adapted physical activity and social activities in a group twice a week and individual health coaching on three occasions. The quantitative pre-test and three follow-ups include physical functional tests, an accelerometer that monitors physical activity continuously for one week, and questionnaires. Individual and focus-group interviews and ethnographic observations will explore the experience of living with AMD and what it means to participate in the EPI for individuals with AMD. The chosen methodology offers a structured way for researchers to explore the experiences and factors that may provide insights into the potential of creative supervised, adapted physical activity in groups, health coaching, and socialising that are significant to enable well-being among older individuals with AMD.
年龄相关性黄斑变性(AMD)是导致不可治愈的视力损害的最常见原因,并影响日常生活。这些影响包括丧失社交活动、降低功能独立性和减少身体活动。本方案旨在描述一种前瞻性的混合方法,用于在基于赋权的身体活动干预(EPI)之前、期间和之后研究 AMD 人群。还为 EPI 开发了一个研究框架。该干预将包括在瑞典招募的 20 名患有 AMD 的老年人(年龄在 65 岁以上)。干预期为六个月,包括每周两次在小组中进行适应性身体活动和社交活动,以及三次个人健康辅导。定量的预测试和三次随访包括身体功能测试、连续监测一周的活动记录仪和问卷调查。个体和焦点小组访谈以及民族志观察将探索与 AMD 一起生活的体验,以及对于 AMD 患者来说,参与 EPI 的意义。所选择的方法为研究人员提供了一种结构化的方式,以探索可能提供有关在小组中进行创造性监督、适应性身体活动、健康辅导和社交的潜在意义的经验和因素,这些对于患有 AMD 的老年人的幸福感非常重要。