Zelihić Deniz, Feragen Kristin J Billaud, Pripp Are Hugo, Nordgreen Tine, Williamson Heidi, Kling Johanna
Centre for Rare Disorders, Rikshospitalet, Oslo University Hospital, Oslo, Norway.
Department of Psychology, Faculty of Social Sciences, University of Oslo, Oslo, Norway.
JMIR Form Res. 2023 Jan 18;7:e35669. doi: 10.2196/35669.
Adolescents with a condition affecting their appearance that results in a visible difference can be at risk of psychosocial distress and impaired adjustment. Evidence for the effectiveness of existing interventions in improving psychosocial outcomes is limited, and relevant treatment can be difficult to access. Young Person's Face IT (YPF), a self-guided web-based intervention, has demonstrated potential in reducing social anxiety in adolescents with a visible difference. However, more knowledge is needed about the variables that contribute to variations in intervention effects to identify those who may benefit most from YPF.
This study aimed to investigate demographic, psychosocial, and intervention-related variables as predictors of overall intervention effects after adolescents' use of YPF.
We used longitudinal data collected as part of a larger, ongoing mixed methods project and randomized controlled trial (ClinicalTrials.gov NCT03165331) investigating the effectiveness of the Norwegian version of YPF. Participants were 71 adolescents (mean age 13.98, SD 1.74 years; range 11-18 years; 43/71, 61% girls) with a wide range of visible differences. The adolescents completed primary (body esteem and social anxiety symptoms) and secondary (perceived stigmatization, life disengagement, and self-rated health satisfaction) outcome measures at baseline and postintervention measurement. The predictor variables were demographic (age and gender), psychosocial (frequency of teasing experiences related to aspects of the body and appearance as well as depressive and anxiety symptoms), and intervention-related (time spent on YPF) variables.
Two-thirds (47/71, 66%) of the adolescents completed all YPF sessions and spent an average of 265 (SD 125) minutes on the intervention. Backward multiple regression analyses with a 2-tailed P-value threshold of .20 revealed that several variables were retained in the final models and predicted postintervention outcome changes. Body esteem was predicted by age (P=.14) and frequency of teasing experiences (P=.09). Social anxiety symptoms were predicted by gender (P=.12), frequency of teasing experiences (P=.03), depressive and anxiety symptoms (P=.08), and time spent on YPF (P=.06). Perceived stigmatization was predicted by age (P=.09), gender (P=.09), frequency of teasing experiences (P=.19), and depressive and anxiety symptoms (P=.06). Life disengagement was predicted by gender (P=.03), depressive and anxiety symptoms (P=.001), and time spent on YPF (P=.14). Self-rated health satisfaction was predicted by age (P=.008). However, the results were limited by relatively low explained postintervention variance, ranging from 1.6% to 24.1%.
This study suggests that adolescent boys, adolescents who experience higher levels of psychosocial distress related to their visible difference, and adolescents who spend sufficient time on YPF may obtain better overall intervention effects.
患有影响其外貌并导致明显差异的疾病的青少年可能面临心理社会困扰和适应障碍的风险。现有干预措施在改善心理社会结果方面的有效性证据有限,且相关治疗可能难以获得。“青少年面对自我(YPF)”是一种基于网络的自我引导干预措施,已显示出在减少有明显差异的青少年社交焦虑方面的潜力。然而,需要更多关于导致干预效果差异的变量的知识,以确定那些可能从YPF中获益最大的人。
本研究旨在调查人口统计学、心理社会和干预相关变量,作为青少年使用YPF后总体干预效果的预测因素。
我们使用了作为一个更大的正在进行的混合方法项目和随机对照试验(ClinicalTrials.gov NCT03165331)的一部分收集的纵向数据,该试验调查挪威版YPF的有效性。参与者为71名青少年(平均年龄13.98岁,标准差1.74岁;年龄范围11 - 18岁;43/71,61%为女孩),他们有各种各样的明显差异。青少年在基线和干预后测量时完成了主要(身体自尊和社交焦虑症状)和次要(感知到的污名化、生活脱离和自我评定的健康满意度)结局指标。预测变量为人口统计学(年龄和性别)、心理社会(与身体和外貌方面相关的被取笑经历的频率以及抑郁和焦虑症状)和干预相关(在YPF上花费的时间)变量。
三分之二(47/71,66%)的青少年完成了所有YPF课程,平均在干预上花费了265(标准差125)分钟。双尾P值阈值为0.20的向后多元回归分析表明,几个变量被保留在最终模型中,并预测了干预后结局的变化。身体自尊由年龄(P = 0.14)和被取笑经历的频率(P = 0.09)预测。社交焦虑症状由性别(P = 0.12)、被取笑经历的频率(P = 0.03)、抑郁和焦虑症状(P = 0.08)以及在YPF上花费的时间(P = 0.06)预测。感知到的污名化由年龄(P = 0.09)、性别(P = 0.09)、被取笑经历的频率(P = 0.19)以及抑郁和焦虑症状(P = 0.06)预测。生活脱离由性别(P = 0.03)、抑郁和焦虑症状(P = 0.001)以及在YPF上花费的时间(P = 0.14)预测。自我评定的健康满意度由年龄(P = 0.008)预测。然而,结果受到干预后相对较低的解释方差的限制,范围从1.6%到24.1%。
本研究表明,青春期男孩、经历与明显差异相关的较高水平心理社会困扰的青少年以及在YPF上花费足够时间的青少年可能获得更好的总体干预效果。